Originally Posted by Neurochic

I can see that you have a good system in place for trying to objectively assess any new symptoms or changes in your health. You are absolutely right that my comments are generally aimed at anyone who may find them useful or who may not realise that there are so many possible causes of general symptoms like flushing or feeling hot/cold.

You are spot on in your comments about your own experience of anxiety - medically CRPS doesn't cause anxiety but of course it is possible for someone diagnosed with CRPS to then suffer from anxiety because they are worrying so much about the CRPS diagnosis. Separating out each condition, disease, symptom or problem makes it much easier to objectively assess what is going on and to identify the most likely cause of each.

Perspective and the bigger picture is so important, isn't it? So often in life you can see people jump to 'worst case scenario' conclusions but from the outside its so clear that they have ignored all of the screamingly obvious and infinitely more likely reasons for their symptoms or problems! Then, if other people just agree with them, it perpetuates the error and gives reinforcement to their incorrect conclusion. After that, if anyone (including a doctor) tries to challenge the now entrenched incorrect views it so often results in mega-defensiveness and refusal to accept an alternative view (however correct the alternative is!!). Always challenging or re-assessing your own logic and regularly stepping back to look at the bigger picture is so important.

Originally Posted by Russell

I'm the same way! It was explained to me that we experience temps from screwed up signals from our brains.
After hearing this I have tried soft music to put or try to put my mind in a relaxed state. It works! So try it.
This damn monster wrecks us all. Don't let others, especially loved ones, suffer because of you. As harsh as it may sound realize it's all in your head and dealing with it is the best way.
Sorry if my anger at this monster gets out but I'm so tired of it all. Please be well and forgive my rudeness....

Originally Posted by NurseKris

Pre-CRPS I was a freeze baby all the time, I always needed an extra layer! Now I am hot almost all the time. I turned my heat way down the other day and my husband turned it back up because he was cold. He is never cold, the man wears shorts in the winter time. Even with the heat set at 65 I was still sweating and shedding any layer I could. I believe it may be related to the CRPS but I wanted to hear what others thought. Thanks!

Originally Posted by megsmountain

Hello. I have very exaggerated temperature responses constantly. I think it's the crps, as it didn't happen before that. I am constantly changing clothes on some days and the thermostat !! My hubby is kind and doesn't comment upon these strange occurrences anymore. Sometimes, in a day, I switch from a tshirt to a full fleece, etc, as I go from "hot" to "cold" even when the temp is stable. A lot depends on activity, but sometimes I am just sitting and I am completely "ebbed" out of my clothes, it can be the texture , fabric, weight , where it is touching, all I know is it needs to be changed. I don't want to recommend a particular company on here, but if you have crps in your arms, hands, like I do, I found some super soft, nice fabrics for me (pm me if you want details). I really just believe it's our cns or sympathetic nervous system kind of overreacting compared to "normal" people's response to any stimuli. That's why the rx meds that suppress the sympathetic or CNS response can be very helpful to some With the heat, is this related to inflammation as well? Its now thanksgiving, so have a great one!! Take care

Originally Posted by megsmountain

Just an addition, as far as meds, clonidine ( I know tons of side effects for some ) really helps suppress or calm down the CNS, direct experience here, also I've read they offer an extended release form so you don't have bp, other spikes when it wears off. There are a lot of side effects, just like any med, maybe something to try on a trial basis. As far as I know, all generic and pretty inexpensive Again Happy. Thanksgiving

Originally Posted by NurseKris

Pre-CRPS I was a freeze baby all the time, I always needed an extra layer! Now I am hot almost all the time. I turned my heat way down the other day and my husband turned it back up because he was cold. He is never cold, the man wears shorts in the winter time. Even with the heat set at 65 I was still sweating and shedding any layer I could. I believe it may be related to the CRPS but I wanted to hear what others thought. Thanks!