Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-16-2016, 10:45 AM #1
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Originally Posted by mama mac View Post
I cried when I read this. So beautifully expressed. I love music. I speaks to my soul. My main expression of music was through movement, dance. I will never spin, twirl or move my feet to the music again in the same way.
I agree it feels like parts of me have died over the past year. The grief is deep and so hard to process. I am fighting to get to the other side and sometimes I feel like I'm drowning.
Music has also been a saving grace throughout all of this. I can put in my earbuds and sometimes float away. Music is a huge part of our family life as well, so it still helps us connect to each other in so many ways.
I have much to be thankful for. I remind myself many times a day. I am trying to build a new version of my life. I still have a long way to go. Thank you for your post. ~mac
Who would have ever thought that CRPS would mean building a new "me"....?

Well said Mac, well said!
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Old 01-16-2016, 06:37 PM #2
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You're not alone. I have been feeling completely lost myself over the past few days, realizing that so many of my lifelong loves and dreams have been lost when CRPS came into my life.
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Old 01-16-2016, 08:11 PM #3
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You're not alone. I have been feeling completely lost myself over the past few days, realizing that so many of my lifelong loves and dreams have been lost when CRPS came into my life.
I can definitely relate!
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Old 01-16-2016, 08:36 PM #4
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Songbird,

That is a unique and tragically beautiful loss. I am sure there is a physical ache where your guitar used to fit next to you.

But I think it is possible for some losses to be transformative. As an artist I really resonated with photography (the more remote locale the better) and did a lot of hiking and climbing to reach subjects. When this became impossible I found my need to create frustrated. What a lot of energy to hold onto! I ended up learning piano in the last few months, something I may not have done otherwise. Sitting still was never my forte.

I have discovered new abilities and found new things to love. With all that is available to try perhaps there is a hidden opportunity in the midst of the changes. I know nothing will quite replace your guitar and that is terribly sad but there are many ways for the soul to sing and I am sure that you will find one.


And for Mama, I am so glad to read of your improvements with treatment. You just may twirl again. Progress can be very slow but still come over time. I remember aching to dance (or even stand up) for the year I spent on a scooter thinking I would never do those things again. And yet just recently I did a little dance at home for my own enjoyment and I did alright.

Don't let go of any of those dreams just yet.


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