Getting MRI Results Today

-Spike- · 02-09-2016, 02:54 AM

Quote:

Originally Posted by catra121

I have to say...I am quite a wreck this morning. In an hour and a half I have an appointment to finally get the results of my shoulder MRI to find out where we go with treatment for this awful shoulder pain I have had since I fell off the top of that ladder back in October.

My biggest fear is not surgery...it is that there is nothing more to do than what I have been doing. The pain is not getting better...nothing helps much except rest but with a 15 months old in the house there's a limit to how much rest I can give my shoulder. My quality of life is awful right now...I can't go out because I can't use the walker that I need because of the RSD so I am basically trapped in the house except for doctor appointments (which are few and far between) and dropping off/picking up my daughter from daycare. Taking baths is one of the biggest things that helps my RSD...and I can't take them more than once every few days because the whole process is SO painful for my shoulder. I don't eat much because quite frankly getting food ready (even making a sandwich) is painful. I try rationing my activities to limit the amount of pain I end up in each day...but 90-100% of that activity is spent taking care of my daughter and not me. I'm not sleeping hardly at all...many many sleepless nights due to pain. The RSD is flaring and the shoulder pain is terrible.

I try so very hard to power through like I do with the RSD...and it's killing me. I really feel like I have hit my limit with how much I can handle...the only light at the end of the tunnel being this appointment and the hope that I will finally get a solid treatment plan and an idea of just how long this is supposed to last. If there is an end in sight...I can make it...but if it's still up in the air or ends up just being yet another thing I just have to accept in life then I just don't know what I will do. I find myself getting so angry all the time. I never act on the anger or lash out at the people I get angry at...I know it's just the pain...but I can recognize that it's there and I am just so frustrated by the whole situation.

Sigh...sorry to unload...I try to always stay positive and it has gotten me through a lot...but I feel like things are just slipping out of control and I'm struggling. Wish me luck that today I can get some answers.

I apologize to you for taking so very long to see your post and to replay to it. I'm struggling badly with my CRPS right now, which is really no excuse. You are carrying a much heavier load than I am right now. It just isn't fair that a quality person like yourself is carrying such a heavy load. It brings tears to my eyes. I am praying for you. I wish I could make your hardship just disappear.

catra121 · 02-09-2016, 03:24 AM

Thanks so much everyone for your kind words and thoughts. My mind is in a little bit better spot right now...not my pain because the shoulder was at a steady 8 most of the time unless at rest for long stretches of time...and since the shot this afternoon its at a CONSTANT 10 regardless of whether I am using the arm or not. Its 2am and I just can't seem to fall asleep no matter how tired I am and pain meds are not helping (or if they are heaven help me if they stop). But I am trying to be optimistic about the shot helping after a few days...it's so easy to get caught in the doom and gloom so I'm trying to drag myself out of it. The boyfriend is off tomorrow so hopefully he can manage baby duty all day so I can rest the arm. I hate putting so much on him...but there's just no way I can do much tomorrow if tonight is any judge.

Anyway...just wanted to say thanks to everyone for your kind words and support. I know so many have it worse than me...I guess it's just hard to have worked so hard to regain a sense of normalcy in your life and have all that fall to pieces because of a new setback. Plus...I was really looking forward to taking the baby to Disney this April and that's just not very likely at this point. I know...not a prioroty right now...but I've been collecting Disney gift cards as birthday and Christmas Gifts since my daughter was born to save up for this trip this year and really wanted to go during the flower and garden festival. But oh well...maybe by September I'll be better which is less crowded anyway. The shoulder will hopefully be better by then.

Hopefully this shoulder specialist will have an answer and a plan for me. I almost feel like I'm back on my initial RSD path again with the doctors...but this pain doesn't feel like RSD and that has me optimistic that there is a way to address this pain and recover from it. So...fingers crossed and keep those positive thoughts and prayers coming...it means so much to me to have you all here for support.

catra121 · 02-09-2016, 10:20 AM

Quote:

Originally Posted by -Spike-

I apologize to you for taking so very long to see your post and to replay to it. I'm struggling badly with my CRPS right now, which is really no excuse. You are carrying a much heavier load than I am right now. It just isn't fair that a quality person like yourself is carrying such a heavy load. It brings tears to my eyes. I am praying for you. I wish I could make your hardship just disappear.

Spike...we all have pain that sometimes prevents us from posting when we want to or even going online when we want to...it IS a perfectly acceptable excuse if one were needed...but it is not. You have always been supportive and caring and I knew you were there supporting me even without your post. Hugs and hope you are feeling better today.

EnglishDave · 02-09-2016, 12:23 PM

Hey Catra,

It is unbelievably frustrating when one has additional pain on top of the 'usual'. Especially when the body part affected is an arm, which one tends to use constantly, without thinking, aggravating the issue and worsening the pain. It must be incredibly difficult having to power through as you cope with your little one. I have excruciating referred pain down my arm, but I have no-one reliant on me, if nothing gets done here, it doesn't matter.

I hope the injection you had starts to give some relief over the coming days and that the Specialist comes up with treatment ideas, or a healing time-factor for you. In the meantime, do rely on your boyfriend for those things you cannot manage and to simply give you a break where you can rest your shoulder. I am sure he will not mind.

Dave.

Jomar · 02-09-2016, 12:49 PM

I also suggest trying the Infrared Heating pad - the heat & healing action goes deeper than regular heating pads. I have 1 from 2004 and it still works great, but got a larger size in the jade disk style for one the back of the recliner.
I got mine for muscle, RSI,CMP pain, but dh & son use it also..for general aches & pains.

http://www.amazon.com/s/ref=sr_nr_n_...nid=2941120011

The Thermotex products have rectangle flat sections, somewhat padded but not nearly as soft/flexible as the smaller circular disk pads in the UTK Heating Pad with Natural Jade Stones.

If you can request or find a practitioner that has a low level laser - some chiros have them - more so than PTs or MDs..
It might be worth trying a few sessions of LLLT for pain relief.
I can say it worked very well & quickly for my various pain areas.
I can't say if it will help for the RSD part though.

If your RSD isn't in the shoulder area, maybe try some of the KT tape/kinesio taping?
https://www.kinesiotaping.com/
There are pretty good videos on how to apply it, but having a pro do it a few times first is the best. It lasts about 4 days,

I recently had a shoulder strain or small tear and my chiro did some Gua Sha and then taped my shoulder. I also used the infrared heating pad a lot along with it.
https://www.youtube.com/watch?v=FJuuIcI-4Es

catra121 · 02-09-2016, 02:51 PM

Quote:

Originally Posted by Jo*mar

I also suggest trying the Infrared Heating pad - the heat & healing action goes deeper than regular heating pads. I have 1 from 2004 and it still works great, but got a larger size in the jade disk style for one the back of the recliner.
I got mine for muscle, RSI,CMP pain, but dh & son use it also..for general aches & pains.

http://www.amazon.com/s/ref=sr_nr_n_...nid=2941120011

The Thermotex products have rectangle flat sections, somewhat padded but not nearly as soft/flexible as the smaller circular disk pads in the UTK Heating Pad with Natural Jade Stones.

If you can request or find a practitioner that has a low level laser - some chiros have them - more so than PTs or MDs..
It might be worth trying a few sessions of LLLT for pain relief.
I can say it worked very well & quickly for my various pain areas.
I can't say if it will help for the RSD part though.

If your RSD isn't in the shoulder area, maybe try some of the KT tape/kinesio taping?
https://www.kinesiotaping.com/
There are pretty good videos on how to apply it, but having a pro do it a few times first is the best. It lasts about 4 days,

I recently had a shoulder strain or small tear and my chiro did some Gua Sha and then taped my shoulder. I also used the infrared heating pad a lot along with it.
https://www.youtube.com/watch?v=FJuuIcI-4Es

I went ahead and ordered the infared heating pad from Amazon...went with the 69.99 one that is a little smaller but it should be find for me as I am fairly small...we'll see how that goes.

I do have RSD in my entire upper body and neck, including back, both arms, torso, and hands...it's just that THIS pain isn't RSD but something else from my fall. Last year when I did PT when I strained my other shoulder (when I was 8 months pregnant) they used laser therapy combined with ultrasound therapy and heat. That was my first 2 weeks of sessions before they did anything more aggressive...don't know why the PT this year started immediately with aggressive stuff which just made the pain worse but no sense worrying about that. The laser therapy did seem to help. We tried the tape and while it made my shoulder feel better...all that was off set when we took the tape OFF and my RSD flared up bad. This shoulder pain is slightly different than last year (in the opposite shoulder too) in that I have the same pain...but also have a different pain too that is more sharp located towards the top of the shoulder as opposed to just the tearing/pulling pain towards the back area of the shoulder.

Pain is still really bad today from the shot. Keeping my fingers crossed that after a few days I will start to feel some relief. Looking forward to getting the infared pad from amazon in a couple days (love Prime shipping).

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