Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-16-2016, 12:17 PM #1
Always_Believe Always_Believe is offline
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Join Date: Jan 2015
Location: IL
Posts: 279
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Always_Believe Always_Believe is offline
Member
 
Join Date: Jan 2015
Location: IL
Posts: 279
10 yr Member
Default The End

Friday I am being discharged from the PT segment of the pain program at RIC after the PT told the MD that I am non-compliant. Never mind that I performed 1/2 the exercises because that was my pain limit for the first 2 weeks, taking one day off to attend a funeral. Yes, I took the following week off to a large degree. I did a few of the exercises here & there but not with any schedule or consistency. However, my pain level went from a steady 8-10 (performing 1/2 the exercises) to a 6-8 (after the week resting).

I read about the program. The MD stated he "believes the most appropriate treatment is the interdisciplinary program" and that "the tools learned in the program will be of the most benefit". So I was thinking there would be a variety of things done/discussed/etc. I did not expect the PT to express so little understanding and offer up a misguided interpretation of "non compliance" due to increased pain.

I don't feel any future benefit in this program. All I am seeing/learning (lol) is how to practice breathing techniques and color in a coloring book. I have been chastised and assigned to documenting everything. I almost don't even want to go on Friday but I am not that small as to quit the program via phone or email. I will be seeing a different MD but I have a feeling the "non compliance" will be passed on.

I just can't believe there is nothing more being done in this program than PT, OT and pain psych. While the amitriptyline helps me fall asleep faster, there is nothing being offered/done thus far that reduces my pain. Do I expect to walk out of this pain free? Hellz no. I know I will never be but I would like to think there is something out there that will bring the pain down to a 4-6 other than total rest. I can't live like that.

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Last edited by Always_Believe; 02-16-2016 at 12:18 PM. Reason: oops
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