Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-10-2016, 06:26 AM #2
BioBased BioBased is offline
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Join Date: Jun 2015
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8 yr Member
BioBased BioBased is offline
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Join Date: Jun 2015
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I am like a human barometer. Any weather change, even slight, registers in someway. I get so tired I can barely walk. I have been going through the freezing and sweating episodes since I stopped taking LDN, which is upsetting, because I don't have the energy to bathe and change my clothing everyday. I live in layers, so I am constantly putting on and taking off clothing. And I live with a heating pad and electric throw plugged in 24/7. My h brings me ice packs during a sweat attack to cool my head down, so I don't end up with a massive migraine.

My stomach is always upset, too. I used to think LDN contributed to this, but now I know for certain LDN has nothing to do with it. I lived on mashed red potatoes for several months, because this was the only food that calmed my stomach.

My newest color change is bizarre. My CRPS foot turns white, while my leg from my knee to ankle turns bright red. There is a distinct demarcation line at the ankle.

I could not stand in the shower for more than a minute yesterday, so I sat down on the floor, but couldn't get up. My h came to rescue me. My feet throbbed and CRPS foot cramped and ached all night.

Have you tried LDN?
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