Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-17-2007, 03:21 PM #11
Imahotep Imahotep is offline
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I've been exercising since the beginning. I seem to be able to do less every year but it feels like a good thing to keep fighting it.

I was never very big on exercise since it always seemed that if you workede and played it should be plenty. I still attempt to do as much work as possible but the things which don't bother my hand keep getting more limited. This means a more formal exercise program is needed which I primarily get in a swimming pool and by walking.
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Old 07-19-2007, 11:20 PM #12
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Hi Ada,
I understand what you mean when you said no matter what you try you end up worse. I went that route for a long time. Before the RSD, I ran or walked 2 to 5 miles a day, did aerobics (taught for awhile) and did weights. Needless to say, I was in really good shape. When I first got RSD, it was only in the hand and I could still exercise. Then it went to the legs. Talk about life changing. Anyways, I tried the water PT and it worked for awhile. I was also given exercise to do to strengthen the legs. I can't get on the floor (since I can't get up from it) so I got a doctor's exam table (and shortened a bit) and do the exercises on that. The exercises were starting to cause more pain so I took a rest for a month and found out that now if I onlydo them every other day rather than every day, I am fine. We are all different and I hope you can find what works for you. My experience has been that I just can't push it now.
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Old 07-20-2007, 02:53 AM #13
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Thumbs up Good post Ada!

Hi ya Ada!
Oh sweetie, I am so sorry that you miss Bill so much honey!! gosh, Ada I do not know how this feels! I can't even begin to imagine dear one. I will however be here if you need me to PM, chat to. Your post made me realize how very important exercise is! I do exercise on good days walk a lot and if I am having a super duper day I dance! gets the heart and blood a pumpin'! LoL Big hugs Ada Love, Desi oh, and thanks again for the good post Ada!
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Old 07-20-2007, 10:32 AM #14
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Default Thanks for the replies.

All week long I have wanted to go to arobics and it has rained every night. This pool is outside.

Last night we had flood warnings most of the night. We have never had them here that I can remember and neither can anyone else. They say here there is what they call a 100 year flood. That's about how often we get them.

Anyway, this has not been another good week for me what with getting sick again Tuesday night. I laid around Wed. and yesterday and still wanted to go to arobics but the rain has hit us every evening.

I have 4 kids here again. I usually do about 2 times a week. They take care of themselves but eat me out of house and home. All teenagers except my 12 year old.

I do try to exercise at home. I noticed last night that my feet were burning on the bottom so I don't know if the problems with my heels are going to cause my RSD to spread or not.

When I get those new shoes Tuesday I am going to try and get back to walking. I just don't want to drive 25 miles to get them now when I have a Drs. appt. up there Tuesday.

I am suppose to get my Cpep machine here soon. The nurse called me Tuesday and I have yet to hear from the company that brings it. I am hoping that will make me feel so much better.

Thanks Desi for your offer of support. I had a dream about Bill Wed. night and I couldnt' find him. It's been the hardest time for me and I know my kids are still having a time with it and the boys. My ex-son-in-law took me to the store last week and he said he missed Bill so much. He siad he was one of the finest men he ever knew. I think I try to keep gong for the boys more then anything.

Ada
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