[Tengboche]

Hi everyone,

I have been diagnosed with CRPS for about 10 months, however it may have actually been going on for several years. I had a silly slip down some wet stairs and did an amazing acrobatic fall and partially tore some ligaments in my foot. Fast forward to....CRPS.

I have managed to surround myself with an amazing team. I have a physio therapist with CRPS knowledge who does acupuncture on sympathetic points, a great neuro (who has helped me with post concussion syndrome for 8 years), a pain specialist/anesthesiologist who does lumbar sympathetic blocks with ultrasound and sedation every other month and a family dr who oversees everything. I have also connected with PARC who has amazing information and support.

I have been doing the anti inflammatory diet, taking supplements, exercising and doing as much as I can to stop the progression.

But....I still have those days when I think....why the heck did this happen to me?? (although I use much stronger language when I say that to myself).

Its exhausting, but I think that it has made me re-look at my life. I have learned as much as I can so that I can have more control. Even though there are limits, I will find a way to live as normally as possible.

I lived in Africa for a while, and if there is one thing that I can say....I am so fortunate to be born on Canadian soil. I would not have access to the medical treatments, the access to these doctors, and the access to the literature that is available to help me deal with this.

My heart goes out to everyone dealing with this, and since I personally do not have any friends with this (which is good) it leaves me feeling isolated as they can't quite understand the pain.

Thanks for reading and allowing me to rant.