Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-31-2008, 07:38 PM #11
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msdrea83 msdrea83 is offline
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Location: Santa Cruz, CA
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msdrea83 msdrea83 is offline
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i just had an iv ketamine treatment on moday, it lasted like 5 hours i think, then time to wake up. because i was already taking ketamine for 2 years i got a double dose. usually the dr leverone would give approx 500 mg over the time frame, slowly increasing the flow. i started at 1000mg and he started the flow at full speed, getting booster of more every so often. i have to take 40 mg ketamine pills twice a day and an ativan pill at bedtime. i never fully went to sleep, which again was a first for him. i was able to talk but i was def not coherant. usually his patients are just asleep, but not in a coma, and are able to breath on their own. i was able to leave the surgery facility once i was able to get up and walk. i'm supposed to stay at home for 2 weeks, and not drive or really do much so i make sure i don't re-injure myself and prevent myself from having a relaspe and coming out of remission. i haven't had any pain for 2 days, and pretty much have just been really tired. i have dilaudid incase i do get any pain, but i haven't had to take any. hopefully after the two weeks i won't have to take any pain meds at all. all my symptoms have gone away. obviously my range of motion and strength aren't back and i'm thinking of going back to pt once i'm able to drive after the two weeks to get all that back. just keeping my fingers crossed i don't get it back. if i do then i can have another one if i feel i need it, he also has an option for doing it several days in a row, going home after each 5 hour infusion and just coming back each morning. its $2k a day, $1 k for the doc and the other for the facility. everyone was super nice. i would def recommend it to everyone. its not covered by health insurance, because it still is experimental, but i know my insurance- blue shield, but they are going to reimburst me. i just have to submit my receipts to them. i have dr leverone's number and email if anyone would like them to discuss things with him. i never had to go in for an evaluation, we did everything over the phone and email. the facility he uses is just south of ucla, and hopefully over the next few months he'll be able to do them in northern/central ca in salinas. i haven't had no pain for 5 years and i definately think that even if it doesn't stick that having it done is still worth the $2k. its amazing to not have any pain at all. i'll keep everyone posted for sure and will answer any questions.

happy new year everyone!!!
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