Good luck with your appointment today. Keep hanging on and believing that things will improve. If you can, please keep us updated.

Shay

Thank you Shay
I will!!!! Thank you again for all your kind and supportive words

Well I got my first lumbar sympathetic nerve block this past Wednesday. I don't think I noticed much improvement with my pain. I have another one coming up this Wednesday for the right side.
If I don't notice any improvements with the 2nd block, I will have to decide if I should try another round just in the event that the blocks may work or just not get anymore blocks.

Hi Sophie,

Maybe your pain isn't sympathetically maintained. Your doctor may have some insight on this and what that indicates for trying any more of them. Did you have any response to the block at all? A sympathetic block will warm the limb even in a completely healthy person...

Littlepaw. I'm not sure if my limb was warm after the block. When this doctor treated me years ago, he would come to the recovery room and he would feel my knees and talk to me. On the day of my block, I noticed that he had a lot of patients scheduled for procedures and I didn't see him after the block.
I may have had a very slight decrease in pain in my left foot, however it only lasted a day or two. I did notice today that I tolerated shoes better today, however I have been rubbing DSMO cream on my feet every few hours.
Could my pain be sympathetically independent already?? Symptoms started mid September. As much as feet burn, I can feel pain coming from the neuromas too! (I see my PM in a 1.5 weeks, so I will bring this up as well.) Well it will be interesting to see how this next block goes. Thanks littlepaw

Sophie,

Sorry if I alarmed you. I should've clarified. CRPS is not always sympathetically maintained which is part of why the name was changed to CRPS. I didn't mean that you'd advanced to sympathetically independent pain, just that it may have a different mechanism.

No Littlepaw. It's not you it's me...everything is alarming me right now! WIth the pain in the bottom of both feet, my activities of daily living have been greatly effected...so I am trying to learn and read up on CRPS as much as I can!!! Thanks again have a nice weekend