Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-31-2017, 12:35 PM #14
lili85 lili85 is offline
Newly Joined
 
Join Date: Jan 2017
Posts: 2
5 yr Member
lili85 lili85 is offline
Newly Joined
 
Join Date: Jan 2017
Posts: 2
5 yr Member
Default I'm new and probably wrote too much...RSD so painful i cannot think

Hi all. I was just diagnosed with RSD 2.5wks ago & was told I'll never dance again. The injury is 2 years old and I've got a lot of damage. I just wanted to introduce myself without disturbing this thread & also have questions but I've read your responses...I learned from back surgery...no needles. For me, I'm to scared of needles now. No nerve blocks. There's research that states it's no more effective then pain medication, PT, etc... I'm sure it works for some...but not me. I finally gave in after 10 years & take pain medication. Do they have a ketamine pill? I heard about a ketamine topical? I can't do an infusion. I'm done with all needles! I've been given Lyrica. What I wanted after 15 years of chronic pain was more pain medicine! I changed my medicine TO A LOWER DOSE (before RSD) and filled it every 2 to 4 months. Then I broke my foot. My doctor of 12 years left the practice. My new doctor doesn't know me. Doesn't know RSD. He is awful (PCP, Same practice). I'd love to switch practices but it's hard to go and say "Hi, I'm opioid tolerant. Every medicine makes me sick but methadone. May I have two, please"? [ I'm over-the moon-happy that this Lyrica seems to work, but it also seems to dissipate quickly...does anyone notice that?] THANK YOU FOR BEING HERE
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