Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-24-2007, 09:39 PM #1
suthernsnail suthernsnail is offline
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Join Date: Jul 2007
Posts: 14
15 yr Member
suthernsnail suthernsnail is offline
Junior Member
 
Join Date: Jul 2007
Posts: 14
15 yr Member
Default feeling sad, alone, angry, and afraid,

hi everyone ,, everytime i go to a dr. i leave feeling alone and afraid. i went to my reumy today for my fibro issues and we talked about my rsd. i asked her how to differentiate between rsd and pn she said with rsd you feel more of that deep burning not like a surface pain and also rsd is more sensitive to light touch and breezes. this is a dr. i realy trust at first she thought i had pn when all the other drs. said rsd. she didn't treat me for the rsd but she treated it as pn by putting me on lyrica 75 mg every6 hrs. she did more than any of my other drs. she said if it was periphael nero. this dose of lyrica would have it under conntrol but it's not . she wants my neuro to do trigger pt injections not with steroids but with anestetic to see if it does anything for my arm and hand.she referred me to a new pain mngmnt dr. for possible ganglion blks. i had 3 of these a yr ago 2 gave real short relief like 1-2 days the 3rd did nothing but i didn't even have the droopey face so i'm wondering if it was a good block to start. i wear a glove on my hand all the time now to protect it from touching things and breezes. any oppinions on any of this i 'm looking for input because i'm confused aggrivated and very sad i can't emphasize the sad part enough. this is all still new to me and the whole last yr has been one test after another and a bunch of confused drs. since surgery was involved when rsd showed up. anyone know of good neuros and pain mangmnt dr. in the st. pete area of fl. itt's been stressful and as all of u know a big greiving process that isn't over yet . thanks for reading gail
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