Oh Sweetie,
I wish I could do something for you. I'm a mom. We moms always want everything to turn out right for our children. We just never seem to give up hope on them.
I sooo much want you to get better! Please keep up your good spirits (which I love).
You are in my thoughts and prayers,
Linmarie

How'd the bath go?? It is nice to get one after so many bed baths... isn't it?! Woo hoo!

I will email you when I can... nice to talk with you! You are so dear to me... you already knew that, but I wanted to remind you how special you are!! Thanks for taking me under your wing.

You are doing brilliant... you really are! You help me learn to manage to get through all the same things.

Keep on keepin' on! You'll pull through... try not to go nuts with the migraines, pain and dystonia!

Love you tons, Sweetie! xxxxxxxxx

Hi. I'm sorry I'm late to respond. Thanks I'm hanging in there and trying to stay in the moment which is not my strong point. Anyhow as for the mom issue I know it may not change things but still using your voice and saying how you feel. Its not good to keep it bottled. I'm in therapy for myself and have you thought about it? I'm now looking into biofeedback which I did when at the pain program at Cleveland clinic which was so helpful for me. I have such anxiety and found it really helped me calm down. As for friends I can relate. All my friends are running around and I feel left out and behind. They don't understand the mental toll this takes too. I think people forget what even a simple phone call means. Is there something you can do for you to lift your spirtis? I know it doesn't take away from what your going through but any mental lift can make things a little better. Hang in there and if you want an email buddy I'm here.

Hey Daniella,

Thanks!!! How are you my dear? Bio is pretty useful isn't it? I'm glad it helped with your anxiety. I am currently planning my holiday which is always cheering it's just the symptoms are kind of bad at the moment and are kind of ruining trying to anything at all. It's hard because I have to have things done like having my legs seperated night time and morning time because of pressure ulcers (my legs twist around each other and I get large pressure ulcers) and all the touching sends me wild for the day, especially if it is done too hard! which it generally is... grrrr... oh well. Was your mum hard at first? many mine is just a SLOW learning....

Love ya

Froggsy xxxxxxxxx

Hey Ness

I'm so glad your bp etc is up and you are doing better - keep going with the methadone.

I am just so frustrated at the moment and just want my families attitude to change - I am glad it's there, but it is so tough to live in the army 24/7. (Even better both my sister and my mother are partially deaf. Makes life so much easier).

Love ya and will PM you later

Froggsy xxxxxxxx

PS Bath was good..!!!

I am so sorry I missunderstood you. It sounds like you are having a very rough time with your health and your family.

I feel like Tayla does. I don't understand how they hospital and Drs. can just not get some test done on you and try to get you doing better. I don't understand how they can just ignore the shape you are in and leave you like that.

As far as your Mum, what I would hope that she would understand is that you need her help more then anything right now but there might come a time when you can do a lot for yourself once you start getting better. I pray you do. I wish we could look into the future and see you at how you are going to be a few years down the road. I have faith that you will see some better days.

Ada

I'm really so sorry. How do you think your mom and family could help you more? Could you try to ask them to do that for you? I mean in physical and mental support? I think for me and sometimes it doesn't work but telling people my needs and not feeling bad for that. I often fear hurting people's feelings but then I get hurt in the long run. It doesn't mean your not appreciative or love you family because you say what is nothering you. You have so much going on and I'm sure if you were in there shoes you would want to help in the best way you could. I know things with health care are different out of the us. I used to suffer from an eating disorder and the girls I knew out of states had a real hard time finding care and in a timely matter. This may not be possible but is there a way you can send your health records to places in US that may be able to help you more? Ok I'm so clueless but what holiday is coming up for you? Well I'm sending thoughts your way.

Hi Tayla

I guess the thing is that over the years we have got the point where every time I end up in ER I end up in hospital for months and get worse and thus I refuse to be admitted. For me to get an outpatient scan takes FOREVER! I have rung my neuro and asked him to hurry up the appointment because of my shoulder (the dislocation means that my shoulder is now being pulled on to my ribcage - I have EDS and so dislocations are "normal" for me, but it's still abit of a nightmare). However you'd think it would be cheaper and easier to do something wouldn't you? but no - Social services bill isn't paid for by health so why worry! (geez and people wonder why I'm cynical!)

Hope you are ok

love

Frogga xxxxxxxx

Hi Ada,

oh well, mum will pull herself together, she just hates seeing me in this shape and she believes that if she bullies enough then I will be able to get better. She also doesn't like having the carers living in the house. I was supposed to have 2 carers but she agreed to be the second carer so that we only needed one, however she now doesn't want any carers - yet doesn't want to do the caring! It drives me nuts... oh well

love

frogga xxxx

Hey LinMarie

How are you? (Love your name by the way). Thanks... I think I am starting to understand that mothers are all built similarly, they all want the best for their kids just they all have different ways of achieving it... Thankyou so much for your love and prayers!!!

Love ya

Froggsy xxxxxx