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#41 | |||
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Great that the back pain is subsiding! I can't believe you are getting up and down off the floor. I can't do that! And making food for your husband? (Forgive me here) Shouldn't he cook when he's home??? (sorry.).
Amazing, though, how well your leg pain is going! |
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"Thanks for this!" says: | RSD ME (12-31-2017) |
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#42 | ||
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Magnate
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I think I maybe mentioned this before, but I have a much easier time showering since I switched out my showerhead to a Delta In2ition. Glad to hear you're doing so well. |
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"Thanks for this!" says: | RSD ME (12-31-2017) |
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#43 | |||
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Senior Member
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I would say it's definitely worse when my pain level is higher...like if I'm flaring I really can't handle ANYTHING touching me. I would actually try a shower if it was just my leg...but my upper body is still a baseline 8 and even a rain drop hits my skin and I feel like I've been shot...it's pretty severe. Even light fizzy jets in tubs send me reeling...so no showers for me at the moment. It's a real bummer...so ready to be done with sponge baths.
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"Thanks for this!" says: | RSD ME (12-31-2017) |
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#44 | |||
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Senior Member
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"Thanks for this!" says: | RSD ME (12-31-2017) |
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#45 | |||
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Senior Member
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Just a quick update today. I had my 2 week follow up today (because actual 2 weeks is Christmas Day). Everything is healing up well. They cleaned the dressings and put new ones on. My next appointment is January 10th. Basically it's just more of the same restrictions. They said I could try to drive if I want to, but to just be careful not to twist too much (which...backing up I don't know how you don't twist too much unless you have a rear camera? So I think any driving will be extremely limited and if it hurts at all I will just wait.
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"Thanks for this!" says: | RSD ME (12-31-2017) |
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#46 | |||
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Member
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Anyway, maybe if you try to have an honest talk where you acknowledge the additional pressure he is under, and clarify the most important needs, and then the things that you think you can be ok if he lets them slide sometimes, and then the things you can handle, he will feel more like a "team" ? I don't know your situation and how you have handled things, but I know what it is like to be married to someone with a disability. |
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#47 | |||
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Senior Member
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"Thanks for this!" says: | RSD ME (12-31-2017) |
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#48 | ||
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Member
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A heartfelt thank you Catra. Your very concise description of your DRG stimulator trial experience has been very helpful to me. I am a very weeks behind what you have gone through and have followed your posts. They have comforted me in realizing that what I am going through is normal.
I had my permanent drg stimulator put in yesterday. I was rather surprised in that the trial was so easy. I thought "nothing to this". Even to the point of telling the fellow prior to the permanent implant that I probably wouldn't need paid meds- just Advil. Didn't need anything much for the trial so why would I need anything for the implant? Boy was I wrong. Yesterday I looked at your posts and saw that what I was experiencing was pretty much what you had gone through. Much thanks for that. The permanent implant surgery was pretty uncomfortable. As a side note, I think we go to the same group of drs. Based on your timeline, I think we have been missing each other by about a day. Maybe one of these times our visits will coincide and we can meet. |
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#49 | |||
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Senior Member
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"Thanks for this!" says: | RSD ME (12-31-2017) |
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#50 | |||
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Senior Member
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Well...the Christmas holiday (24th and 25th) was a bit rough for me. Probably overdid it helping my daughter with gift opening...extra bending and reaching. Around noon on the 25th I started feeling...weird. Not more pain and not sick...but super exhausted and my back felt...weak?? I guess that's the best word for it. Thinking maybe it was just muscle fatigue or something...was having almost free fall sensations. Didn't really get to rest much the 26th either since family came over to help but...well...that's never as restful as it should be for me. But yesterday and today I have just been sitting in the recliner and resting all day and I am starting to feel better. So I think it was just overdoing it and my muscles just aren't ready for things.
Otherwise everything is going great. Leg still feels great despite the below zero temperatures (which my upper body isn't liking at all and I'm not in full blown flare up but the pain is a 9 and I'm having a hard time with the hyper sensitivity on my upper body. I haven't left the house in several days because of the cold but will need to soon (running out of food). |
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"Thanks for this!" says: | RSD ME (12-31-2017) |
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