I'm here! I've had CRPS for 21 years in my right arm with progression to my left arm 5 years ago. I had a cervical SCS implanted in Feb. 2015. I still work, but I am miserable.

Last June I started perineural injection therapy in both arms. It's hundreds of injections of dextrose (sometimes with lidocaine too) using ultrasound. It causes a massive flare at first, but then starts to heal the nerves. I've had 3 sets of injections and the symptoms are slowly improving.

I won't lie - it's very expensive since it's not covered by insurance. I spent $8500 last year for the injections, so it's not for everyone. But I wanted to share what I'm doing since we're all looking for a miracle cure.

Painfree hugs to all suffering from this beastly disorder
Lori

So are the injections a permanent solution or a temporary fix? I'm curious as I haven't heard of this before.

Well doing well except this last year found out I can’t take nasids because of kidney problems cause because of there use had nerv block done in January Doctor counted up how many he has done for because was retiring 170 an still going strong if given enough time I always hang in there

I avoid most nsaids too due to stomach issues. I am able to do celebrex but that's about it. I so wish the blocks had worked for me but sadly I'm left with a med cocktail and a lot of pain.