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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-15-2020, 07:37 PM #1
RSD31 RSD31 is offline
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Default Bad flair up
Can’t deal with this live on border in Canada my RSD is work related US side an Can’t get across the border it is shut down an I need to go to hospital but the hospital is dealing Cov -19 **** and I don’t need that too. my pain has been a 10 for the last 3 days and I’m going’ out of my mind I’m hiding in the back bedroom because I can’t deal with this anyone.
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Old 05-19-2020, 07:12 AM #2
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I'm so sorry you're dealing with this! Do you have a pain management doctor you can call? Do you have any meds you can take for it? Or medical marijuana or anything? I hate the bad flair ups...it's like nothing works except massive doses of meds and even that doesn't always help that much. Hope you're feeling better soon.
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Old 05-19-2020, 09:07 PM #3
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I went to hospital an got a couple of pain shots pain doctor wants to admit to hospital for a couple of days.
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Old 05-24-2020, 04:25 AM #4
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Quote:
Originally Posted by RSD31 View Post
I went to hospital an got a couple of pain shots pain doctor wants to admit to hospital for a couple of days.
I'm glad you got some help. Keep us posted! Hang in there!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 05-26-2020, 07:49 AM #5
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Quote:
Originally Posted by RSD31 View Post
I went to hospital an got a couple of pain shots pain doctor wants to admit to hospital for a couple of days.
How are you doing now? What is your treatment plan going forward? I think we're all always looking for ways to improve our own
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Old 05-31-2020, 12:07 AM #6
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Default Katamine
They want me too do. The katamine infusion but my wife an daughter are not happy with what they have read about it I would love to talk to someone who has done it the problem I think for me is I’m 42 years this June with this RSD and I think I,m running out of thinks that will help me because I,m having problems with kidneys and other organs because of the RSD and the long term use of Rx’s.
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Old 06-01-2020, 07:22 AM #7
annabanana123 annabanana123 is offline
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Originally Posted by RSD31 View Post
They want me too do. The katamine infusion but my wife an daughter are not happy with what they have read about it I would love to talk to someone who has done it the problem I think for me is I’m 42 years this June with this RSD and I think I,m running out of thinks that will help me because I,m having problems with kidneys and other organs because of the RSD and the long term use of Rx’s.
I'm sorry! What about the ketamine are they unhappy with? I would try it in a heartbeat if my insurance was willing to pay for it. Also which meds messed up all of your organs? My understanding is some are worse than others and I'd like to avoid what I can...praying you get some clarity and can reach the same page as your family on what the best next steps are.
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