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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Member
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Hi Everyone.
I'm wondering if others have the same issues that I do. I'm increasingly been unable to control my hands. Picking up small things - like a bobby pin, typing is affected, shaking and the feeling of being unstable/uncontrollable. This is really starting to become a concern. I've been having problems remembering things. For instance, we had a family gathering this weekend. My husband and I talked about what we were going to bring to contribute. I went to the store to get those things. I came home with something totally different. I honestly forgot what I was to get. Another example, I needed to run by the bank - 2 minutes before I said that I needed to do this - 5 minutes later I'm on my way home... I don't remember what I was going to do. Also, I've noticed my eyes are affected - I have a haze over my eyes - one eye will be blurry, but the other isn't, 1 side of 1 eye is blurry. I wear contact and specifically asked my dr if it was my contacts. She said, no they look fine - it must be your vision. I've also noticed more often that I'm studdering. I repeat 2 letters either at the beginning or mostly at the end of a sentence. Do I have the medication to blame? My concern is that it's not the medication. Do others have these issues? ![]() |
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#2 | |||
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Magnate
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The hand issues could be the TOS. I drop everything. I dropped something on my sister's foot while she was here. It takes me several times to pick small items up when I drop them on the floor.
My memory is extremely bad. I can't remember what I am going after from one room to another. I make a grocery list and forget to take it with me. I get home and think about the things I was suppose to do when I was out. I honestly don't know what it is from for me. I chalked it up to my depression. My eyesight is really blurry also. I can't see far off nor close up at times. My sister did our driving after the first day here because I pulled out in front of a car I didn't see. A friend of mine says it is from Fibromyalgia. I am going to get my eyes checked soon to see what the Dr. says. She said they told her they couldn't do anything about her glasses because her eyesight wasn't due to them but the Fibro. I think also it could be from the meds. I'm not on as many as some so I don't think that's it for me. I don't know wheather to chalk it all up to RSD or other things that we are dealing with. Ada |
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#3 | ||
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Member
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Memory is often an issue. I had trouble with it even before I got on medication but it seems everything that helps the RSD hurts memory.
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#4 | |||
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Co-Administrator
Community Support Team
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Dealing,
those sound so much like my RSI/TOS sx that I had in the beginning. I thought I was getting Alzheimer's, ADD and my eyes got noticeably worse as far as reading vision was concerned. And I couldn't turn/use my wrist/hands in certain positions or pick up small items at all for a time - i would get very sharp cramps {zingers} in the back of my hands. Members TOS sx listed- http://neurotalk.psychcentral.com/showthread.php?t=5618
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Search the NeuroTalk forums - . |
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#5 | |||
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Member
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Ya know, Dealingwithtos... when I had an MRI on my brain in Feb. of this year, the Doc. found Atrophy there. He said it is very small, but a person my age should NOT have this!! It is usually assoiated with folks in a much latter age group.. 80's 90's!! He said I am far to young to have this!! I forget some things, I do think mine is caused from my meds. I do studder somtimes. I do cross words, quizzes, etc. to excersise the brain. It is very good for your brain to keep it going and active. Now, as far as the atrophy go's.. I need to make an app. with a Neurologist! Love, Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#6 | ||
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Member
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Thank you for responding.
Sometimes it's hard to know if the pains, etc are from RSD or from TOS. I forget that I have TOS because of the problems with RSD. Plus the RSD is visible, the TOS isn't. I'm not sure if that makes sense or not. I am thankful that I'm able to function as a somewhat normal adult. But, to be honest, it's really getting hard. I mean really hard. I tried to vacuum last night. Not with my bad arm, but with the other. I just can't do anything anymore. I feel horrible that my husband has to do everything. He came down and "yelled" at me - well not really "yelled" but told me I shouldn't be doing that. I just feel so bad. He's getting the last bedroom done in our basement for our son and - on top of that - needs to do the laundry and other things. Do others go through this? I feel like a slug for not helping. But at the same time just getting to work every day is hard - and increasingly painful. He doesn't ask for me to help. I went grocery shopping this weekend. I came home in tears. Horrible pain. I am just trying to do too much... |
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