Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-21-2007, 06:17 PM #1
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Quote:
Originally Posted by friendsfan View Post
hi im a 25 year old female and recently been diagnosed with CRPS type 1, in my left knee/leg.. im just here to chat to people who have been through this or people going through this.. as im really struggling with this diagnosis
faye



Hi Faye,

Welcome.
There is a huge chance that you can be cured with your early diagnosis and age. The diagnosis does not have to be scary for you (even though I understand completely)
Please make sure that the team of people looking after you are up to date with all the current treatments for RSD/CRPS.
Have they mentioned nerve blocks or mirror imagery?
Please also realise that those people who get better do not access these forums for long so what you read here may not truly represent the outcome of all people who get RSD / CRPS.
Sending you lots of luck
Tayla
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Old 09-21-2007, 09:01 PM #2
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Hi Faye and I too want to welcome you to the forum. I can so relate when you mentioned that your struggling with the diagnosis. I too struggled with it. I didn't want it to be true that I had this. I was in denial for awhile there. I found this board and let me tell you, you will find yourself right at home here. we are all in this together, hand holding hand, so please just keep reading, reading. post anytime you want. You will find much help here. take care, and again, WELCOME FAYE! ~Love, Desi
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Old 09-21-2007, 09:24 PM #3
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Faye,

Welcome to the group. It is scary to have this beast, but you will find a lot of great information here. any questions or worries, just write. We have all been there or are still there. You will have ups and downs. Don't worry about complaining here, we all do.

Mary
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Old 09-22-2007, 02:42 PM #4
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hi, thanks to everyone who has replied and the kind words, expect to see more of me this coming week
faye
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Old 09-22-2007, 05:17 PM #5
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Good luck.

Work hard on getting better now. If you're successful then remember that
it can come back so don't take big risks of injury. If you can't shake it, don't
despair. You can't have a normal life but you can have a new life.
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Old 09-23-2007, 03:29 PM #6
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hello again

im just asking, but for the last 2 days ive really been struggling to move/use my left arm...is this part and parcel of CRPS? this happened to me about 3 years ago but i recovered from that so i never thought anymore of it...
the CRPS is in my left leg, i have posted this again just in case no-one reads this

thanx
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