[dreambeliever128]

I had 3 blocks that did put my RSD into remission. They can be used to diagnose RSD. Others will come on and tell you their experiences.

I have blocks before any surgeries to help keep it from spreading or coming back out and that has been helpful.

Some people don't benefit from blocks. Some say it's because of the time lapse between getting the RSD and getting the blocks but I believe that they can help some no matter how long it has been between getting RSD and getting blocks.

Everyone has different symptoms for the RSD. I had both temperature changes and color changes but since the blocks I only get the color change when I walk and let my hands swing and swelling comes with the swinging the arms too.

What I remember talking about on here too is how different symptoms come at different stages of the RSD.

Ali had a bad experience with her nerve block and sometimes people do. On my 3rd one I had a bad experience but I believe I had a panic attack that messed me up.

I am not sorry I got those blocks. They were the best thing I could have done to try and help put my RSD into remission. It kept me from having to take a lot of meds also which I hate to do.

Good luck and let us know how things go with you. Stick around, you will get more answers here soon.

Ada

[Desi]

Like, Ada The nerve blocks were a God send to me! I had 2 nerve blocks so far and I will know for sure if I am indeed in remission.(I go to my PMD in 3 weeks, or is it 2 weeks? LOL gotta check my calender). I have no pain, since the 2nd. nerve block was done on Nov. 1st. I don't know how to act anymore, since pain was my shadow . It's great to feel "0" pain. My first block lasted 4-5 hrs. the 2nd. block lasted a good 14-15 hrs. I would also like to welcome you here and I hope you stay, because there are lots of nice people who can give you good advice. Good luck ~Love, Desi

[GreyHoundLover]

dham,

Welcome, this is the best place for you right now. I've only just arrived myself and I have received so much good information and support from the nice people on these forumns. It will defiantley change your life reading what others have through here and what experience they have to help guide you.

I wish you lots of luck in your journey to come, I'm thankful you have found this site as well. It will definatley be a good support system for you in so many ways. I do hope you feel better as well. My heart goes out to you.

Please keep us posted on your treatments.

[Kyzyl363]

Hi there. Nice to meet you. Sorry it has to be because of RSD/CRPS.

I had an ankle sprain just over 2 months ago. I told my doctor that I felt pain up the sides of my lower left left to my knee and a couple spots around me knee. The pain kind of came and went. I was told to wear an ankle tensor or wrap it in a tensor. The pain from wearing it though just got worse and worse as time went on. I finally couldn't wear it anymore and then I couldn't even wear my boots or shoes or a sock. The pain was just too much and yet it was all so inconsistent that I didn't know if I was really experiencing it as bad as I thought or ? After a month of my doctor not knowing what was going on I saw another doctor that said CRPS. Even when he saw it there was very little swelling, I told him it hadn't swelled yet so? And that the skin was drying out in patches on my left foot but not on my right (actually I just noticed it at the time of my appointment) and that I thought my toes/foot was colder on my left than right foot. He said yes it is colder. But, he could move my ankle around no problem but I couldn't put pressure on it for too long without getting pain. Within a week I was having severe migranes, though I never thought to associate it with any of this. My foot would change color every once in a while and the swelling stayed minor.

I had an MRI and nerve conduction testing over the next couple of weeks which showed nothing. My toes then started to feel like they were sweating a bit, like a cold sweat was covering my foot/toes.
I then had a functional assessment on a Tuesday for WC. Friday the pain was INCREDIBLE in my foot and leg. I didn't realize that the pain in my other leg had started off/on for about a week. It would burn in all the same places as my other foot and has followed a similar pattern as my left foot/ankle/leg up to and including now. What's worse. About a week later both my arms started to burn. They burned so badly and my wrists hurts so much I couldn't chop vegetables without crying. I was also freaked out. That pain would come and go in both hands. They would tingle, get shooting and shock like pains and burning. I tried to squeeze them and the pain would slowly start, aching and cold burning and more aching.

A week later I started physio. Two days into physio and my whole body was set off! I burned from head to toe and didn't know what was going on. Wednesday I couldn't stand the feel of my clothes anywhere on me. I was so uncomfortable and burning. Pressure made things worse. It was horrible. I was then given something to help knock me out and relax my muscles. It was a strange sensation when I woke up because some of the pain was still there in all the key places it had initially shown signs of starting but the rest of me calmed down. The next two days weren't too bad but then today I am back to burning head to toe. Mild and manageable but gets to be trying. So, now I have pain in my arms, shoulders, neck, back, legs, butt all the time now. I am on gabapentin but it takes 6-8 weeks to prove effective. Some sites suggest that if no progress has been shown after 8 weeks to stop taking it. Now I have Amitriptyline to help me sleep at night but I don't seem to be getting a results from that.

So, my symptoms have been getting progressively worse with time. They have come and gone. I have had cold limbs, warm limbs, cold sweats on my limbs and at night early on. I have had migranes, they went away after I started the gabapentin. Discoloration off/on. My nails on my toes are starting to ripple/groove. Swelling has gotten a LOT worse in my original injury area, that is when it decides to swell. I have a tough time tolerating the feel of fabrics or pressure on me. For the most part I can tolerate it but it is like when it brushes my skin it is similar to getting a rug burn. When I stop moving it calms down. If I brush my arm with my hand lightly it will be followed by a burning sensation. I find my limbs outside of the original injury to be more sensitive to lighter touch. I cannot tolerate any prolonged pressure or standing without experiencing severe aching, throbbing and outright pain.

That's me. Sorry it was so long winded....hope I was able to help. Take care J