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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Hi Linnie!
Duh! now why didn't I think of my former best friend when I was going through this RSD like crazy before?? I am going to use my heating pad as soon as possible. As for tea, I have been drinking peppermint. And you are so right, it is so good for the tummy! I love it!! This pain does make me feel kinda stressed now and it is driving me nuts!! Thanks again, Linnie!~Love, Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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Magnate
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Desi,
I feel so sorry for you, I really hope things start looking up for you. Yes do try the heat pad it could help with the pain. Did you ring your doctor? if so what did he say? pain free hugs Love Alison
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To the World you may be one person, but to one person, you may be the World. |
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Hi Ali,
Your so sweet to respond to everyone on here!! I have to call him around 3 today. He wasn't in the office yesterday. I told the nurse up there what was going on. She asked me how long I was pain free after that last Stellate ganglion nerve block, I told her around 2 weeks and she said that was good. So I am calling him today. I will let you all know what he says. I can't get in to see him sooner, due to him being booked till then, so I will just have to wait. Thanks again Ali, your a doll!! ~Love ya!!Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#4 | ||
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how goes the battle desi?
my guess is you slipped into that funny in between realm of pain, where you have spent so much time in pain once you experience a break in the cycle you feel like you are out of the woods and want to make up for lost time. so you do everything you wish you could have done but coudnt because it hurt to much and it overwhelms your body. since you have such good experiences with the sgb my guess is that you probably will bounce back following another one. usually the cycle for a sgb series is with the first one you experience x amount of relief with the second you experience x days plus y and with the third you experience x plus y plus z. the excessive activity is a normal reaction and the fact that your body's response is limited to one side seems to indicate that this is a normal flare cycle. with the sgbs you will continue to experience relief (unless you have hundreds of them...at some point they just stop working..go figure). if i were a betting person (and as a crps patient i would say i am ![]() every crps patient who experiences a large amount of relief following a block or a series of blocks will probably do exactly what you did (i know i did), and i know when you are curled up in bed miserable the thoughts rolling through your head are what was i thinking, no worries next time you will know you can do some of the stuff around the house but you cant get it all done in a week. i am sure you will bounce back after your next block and you will return to feeling good. its ok to stumble...we all do. you will be ok enjoy the holidays...your doc will get you in and fix you up
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rsd following a botched epideral for knee surgery 1993 remission from 99-2003 shoulder dislocation 2003 CRPS Type 2 scs (cervicle 2005) (lumbar 2007) Strong mind Strong body . |
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Thank you so much Wakegirl!
I really enjoyed reading your reply. every single thing you wrote was ohhhhhhhhhhh.. so true!! I know it will be hard over the holidays. I am hoping Bill and me and our daughter will be invited over one of our two son's homes Christmas day. My mom cooks every Christmas and we are going over there Christmas Eve. I will try to take it easy. I don't ever want to do what I did (cleaning non stop like a mad woman), LOL and then paying for it 2 days latter. uggghhh... My house is at least cleaner for Thanksgiving tomorrow! Thanks again Wakegirl!! ~Love, Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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