Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 11-20-2007, 08:28 AM #1
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Default

Hi Linnie!
Duh! now why didn't I think of my former best friend when I was going through this RSD like crazy before?? I am going to use my heating pad as soon as possible. As for tea, I have been drinking peppermint. And you are so right, it is so good for the tummy! I love it!! This pain does make me feel kinda stressed now and it is driving me nuts!! Thanks again, Linnie!~Love, Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Old 11-20-2007, 08:46 AM #2
ali12's Avatar
ali12 ali12 is offline
Magnate
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Heart

Desi,
I feel so sorry for you, I really hope things start looking up for you.
Yes do try the heat pad it could help with the pain.
Did you ring your doctor? if so what did he say?
pain free hugs
Love
Alison
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
Old 11-20-2007, 12:24 PM #3
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Default

Hi Ali,
Your so sweet to respond to everyone on here!! I have to call him around 3 today. He wasn't in the office yesterday. I told the nurse up there what was going on. She asked me how long I was pain free after that last Stellate ganglion nerve block, I told her around 2 weeks and she said that was good. So I am calling him today. I will let you all know what he says. I can't get in to see him sooner, due to him being booked till then, so I will just have to wait. Thanks again Ali, your a doll!! ~Love ya!!Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Old 11-21-2007, 10:43 PM #4
wakegirl wakegirl is offline
Member
 
Join Date: Aug 2007
Posts: 119
15 yr Member
wakegirl wakegirl is offline
Member
 
Join Date: Aug 2007
Posts: 119
15 yr Member
Default

how goes the battle desi?
my guess is you slipped into that funny in between realm of pain, where you have spent so much time in pain once you experience a break in the cycle you feel like you are out of the woods and want to make up for lost time. so you do everything you wish you could have done but coudnt because it hurt to much and it overwhelms your body. since you have such good experiences with the sgb my guess is that you probably will bounce back following another one. usually the cycle for a sgb series is with the first one you experience x amount of relief with the second you experience x days plus y and with the third you experience x plus y plus z.
the excessive activity is a normal reaction and the fact that your body's response is limited to one side seems to indicate that this is a normal flare cycle. with the sgbs you will continue to experience relief (unless you have hundreds of them...at some point they just stop working..go figure).
if i were a betting person (and as a crps patient i would say i am ) i would say try to take it easy over the remainder of the holiday (easier said than done especially when you are the cook) and after another block you will return to that wonderful place of feeling pretty good most of the time. the block wont last forever, and the more exertion you apply to your body the shorter that space of time will be.
every crps patient who experiences a large amount of relief following a block or a series of blocks will probably do exactly what you did (i know i did), and i know when you are curled up in bed miserable the thoughts rolling through your head are what was i thinking, no worries next time you will know you can do some of the stuff around the house but you cant get it all done in a week.
i am sure you will bounce back after your next block and you will return to feeling good. its ok to stumble...we all do.
you will be ok
enjoy the holidays...your doc will get you in and fix you up
__________________
rsd following a botched epideral for knee surgery 1993
remission from 99-2003 shoulder dislocation 2003
CRPS Type 2 scs (cervicle 2005) (lumbar 2007)
Strong mind Strong body
.
wakegirl is offline   Reply With QuoteReply With Quote
Old 11-21-2007, 11:08 PM #5
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Default

Thank you so much Wakegirl!
I really enjoyed reading your reply. every single thing you wrote was ohhhhhhhhhhh.. so true!! I know it will be hard over the holidays. I am hoping Bill and me and our daughter will be invited over one of our two son's homes Christmas day. My mom cooks every Christmas and we are going over there Christmas Eve. I will try to take it easy. I don't ever want to do what I did (cleaning non stop like a mad woman), LOL and then paying for it 2 days latter. uggghhh... My house is at least cleaner for Thanksgiving tomorrow!
Thanks again Wakegirl!! ~Love, Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 02:05 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.