Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-02-2007, 07:55 PM #17
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frogga frogga is offline
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Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
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Heya

I have major hypersensitivity in my face/ mouth though much worse in mouth/ eyes. My mouth burns and can't really handle hot or cold foods.. especially extremes. I have problems with my stomach etc so can't handle meat or dairy which is frustrating!! You describe the throat thing well - it's like it's not listening and won't respond even when you are trying to force yourself to swallow. I also aspirate alot, like WB says where you stop being able to breathe because you have gone into spasm and swallowed wrong and flooded your lungs - it's a frequent occurence when I'm eating and a nightmare to deal with - so I tend to have thick things. It feels like my throat is on fire and things I swallow just scream all the way down my throat. I hate the throat spasms - they are so horrible - they affect my chest and breathing as well which can be a nightmare!

Diet wise I don't eat meat or dairy. I find that soft food is considerably easier. I struggle with swallowing so eat soft mushed food much of the time and generally avoid rice/ crisps/ biscuits etc. I try and eat through the day instead of just meals because it takes me so long to eat that otherwise I end up giving up on food. Fruit is brilliant as are vegetables - these can be mashed and if you go for blandish baby food like ones I find they make me less sick. I can't really tolerate juice at the moment so go for smoothies with rice milk (can't tolerate soy at the moment) and things that are really really bland. I've discovered that cinnamon I can tolerate and reduces the hypo extremes so that's great. I drink lots of tea (just over room temp) especially Roobios/ Redbush which reduces inflamation and also reduces dry mouth. I tend to drink it with vanilla in the mornings and with cinnamon in the afternoon. I also drink green tea (high in anti-oxidants). Soy yoghurt is also good if it's room temp but I aspirate pretty easily on it on bad days. Oh and I also try to eat muesli as much as possible mixed in the with yoghurt or other fibre stuff.

Much love

Frogga xxxxxx
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