Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-11-2008, 09:53 PM #11
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dianna dianna is offline
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dianna dianna is offline
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Join Date: Jun 2007
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Quote:
Originally Posted by CZZ74 View Post
So sorry to hear you have been diagnosised with RSD, It does sound like you do have it. the blocks are very important early on as they can put you in nto remission. there is no cure. Ketamine is also a wonderful resource early one- although it doies not work for everyonte. use the search this forumn key for " ketamine" and you uwilll get all the information you need. I coulldnt makee it with out it but everyone is different. The key is to keep the pain managaeded. When the pain is uup RSD is spreading- it is very opportunistic. BE sure to read the intactabel handbook quide, it it indinsible. Meds alone are not enought. Thisis the best mannual I have ever found for our disorder, accepting it and managing it. Good luck and keep us posted.
CZ2007
Coma in Germany Ketamine, May
Booster Infusions continuing now.
Where do I find this intactabl handbook guide? So it sounds like the ketamine is working for you, but you still have some pain. Would you mind explaining your current condition before and after the infusion. Oh, and did you go into a hospital for days using a high dose or the low dose. I'm kinda confused on the infusion. I saw a video clip for one done in a hospital. Yet my doc wants to do one to me in his office from9am-3pm-is for 4-5days and let me go home at night with an IV bag.

Thanks for your help.
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