Thanks for the info GnP--
I am going to show it to my daughter who has been relatively pain free for a couple of months until this week when she tweaked her knee (not a known RSD point for her--yet) Her foot however, not in pain sure looks like RSD in full mode--it is weird and I guess it is just building in her. Anyway, the inflammation in her knee is what we need to calm down so the pain will stop. A question about this diet, if I purchase gluten free products, will that open some options for her? She is a good eater but is very thin and needs to keep calories. Also while being a good eater, fish isn't for her. I think I can make this work but I feel a bit rushed in it as it is so situational.

I agree with Vicc that life is to short to limit the good things, but right now, walking and school are the good things in her life. She just completed her first semester of high school, first full semester in over three years and came out ranked #1 in her class and on the highest honor roll. Okay--didn't mean to brag but I am so proud of her and all that she has accomplished. The best part is that for the first time in three years she has friends.

Thanks for the info-

I think diet is important. If we can keep from getting any other disease to go with RSDS then we need to if that's all a diet does. A person doesn't need diabetes, GERD, Ulcers, and other medical problems by eating too much of the wrong thing.

I do believe that it could make the pain worse too. If you have RSD internally then the wrong ingredients of certain foods could set the pain off. I deal with bladder pain and pelvic pain. I have learned that I can't do tea, oranges, things with acid in them.

I think staying on the right diet will keep you from getting more sick in other ways and making the RSD worse.

As far as Dr. Hooshmand. I have his book. I bought it about 5 years ago for me and one for my Dr. It was the best thing I could have done. Everything in there might not be up to date or right but if you are able to use some of his training and knowledge to help yourselves then that's a good thing.

We take what we learn from each person we read from or any of you and use what we feel we can. As far as herbs and vitamins, a person should always check with their Dr. to see if they are ok to take with the meds you are taking. Some donot.

Have a good day.

Ada

RSD mom
If you read my last line it said if it feels good and it is not toxic to basically do it.
This means everything positive that nourishes your body mind and soul in ways that make you feel good.
Sometimes with all we have going on we forget the most simple pleasures in life - listening to music can be a great pain reliever if it gives you pleasure - a bath ; the ( right ) tough of a loved one - a hug or talk from a friend or mother .
If heat is good for your symptoms use it more often - epsom salts baths go for it - don't forget your friends especially as we all have a tendency to do that sometimes when we are not feeling so good .
Get back to basics and remember what nourished your soul and you before this happened- do a jiggy once in a while if you are still able - laugh from your gut- so healthy !!!!
On a more day to day level I have been going to the gym since I recovered from my bilateral ribresections which gave me RSD ; I have been in the gym with dystonia in both feet and bone crushing pain that kept me up at nights . Nothing has ever stopped me as I refuse to envision a life without walking .I have to keep using it or I will lose it so to speak.So,I have always soldiered on .
I do listen to my body and adjust the level of intensity and workouts according to the condition my condition is in .
I use the eliptical trainer to keep the energy flowing in my body even when my calves were cold( they aren't any more and my dystonia is almost gone!!!- knock wood a thousand times !!!!! YAY
I have been told by many doctors that I was doing the best thing for me.Ok for that I believe them .
My RSD hands ( my initial sight ) are still very strong some 8 years later from lifting weights(very light) this whole time. As I got this through bilateral ribresections(and more) I have always felt my arms and hands were my weakest link despite my efforts and positive attitude.
One of the things the homeopathic doc said to me was "Your hands are strong.Get that thought out of your mind and start using them as often as possible .
I went home and cooked.I hadn't done that in years thinking my arms were too feeble,Yes even me .
That paradigm shift in my brain was so necessary !!!! Sometimes we get stuck without even realizing it.

Please DO NOT STOP LIVING !!!!!
That is the worst thing that we can do for ourselves. Being busy is a gift - a distraction and so healthy any way you can manage it within your current limitations .
School is fantastic - go by all means - do not let a little thing like a disease stop your life

I was already on a head start with this path practicing meditation and a balanced diet (not as balanced as the list ). I started with talking to my sick body parts in only the most loving and caring of ways .I love my feet -when they are feeling bad I send them messages of terrific love caring ,energy and warmth....I won't go in to what I say - you can make your own love song to your sick body parts-see what a positive effect it will have
(if they are cold/hot . Be good and nice to yourself .It goes a long way!!!
Buy some body scan meditation CD's from Amazon
The evidence is out there on the amazing positive effects of meditation on pain


I did not get this way through the good times.
At a very decent low I read a book called Wherever You Go There You Are
by Jon Kabat Zinn
buy it for the title. Buy any of his books "Full Catastrophe Living "is another good one
It teaches you to try to live in the moment which is far less overwhelming than worrying about what may be. I then created a lifestyle that worked for me.I have always been healthy.
I have a favorite saying - I won't bore you with too many
"Worrying won't change the outcome ." It only hurts us with this condition.
Whatever is going to happen will happen whether you worry or not.
So do whatever you can to effect positive change and leave the worrying out of the equation.Not worth the stress.Easier said than done and always a work in progress.

I too need to gain weight RSD mom - There is a sight called "Heartfelt Medicine" that I found through much research -don't move forward without that research - he is not my homeopath but ya never know - he has a shake mixture for sale on the internet full of many essential fatty acids(high in good calories) - nutrient rich foods - anti inflammitory properties etc. Sounds expensive but for that $300 you are getting 5 lbs worth of product and you only need a teaspoon of most of the ingredients per shake.This will last a very long time !!!!!!!!!!!!!!!!!!
I plan to hit the place up for a good recipe so I will share here if you are interested.Let em know
This shake is not only for weight gain but for healthy living period!!!!!

I hope I have covered everything
Oh Vicc for once I have to agree with you although your methods are dubious -Hooshmand is a shady dude indeed.
Some of his puzzles can be applied but a lot are outdated garbage Please use them with absolute discernment .His motives on everything cannot be trusted.

I care first and foremost about everyone's wellbeing .

Peace

GnP

Have you read about the "eat right 4 your blood type" ?
- a lot of it fit for me & my blood type.
Certain foods would make me feel bloated or just not comfortable and after I read the book I could see why.
Most of the foods that kind of bothered me were the ones I shouldn't have been eating.

The guy has a website and his books are in the libraries if you are interested in looking into it more. http://www.dadamo.com/knowbase/newbie/1.htm

I read Full Catastrophe Living as well, and I agree, it was a good use of my time. Acupuncture also seemed to help, and my exercise regimen, and I say regimen, from the time I could only barely even walk across a pool because the grouted spaces were so painful, to yoga lite, to swimming, and yoga medium, and swimming, and weight training, . . . but it was slow slow slow s l o w progress.

Also, my psychologist reminded me that my pain/disease doesn't define me--that it's only one part of the big picture of who I am. That helped a lot.

Thats a GREAT one hopealot - You are NOT your disease .It does not define you .We are all SO, so much more
I am confused Jo - which diet do you follow
That diet by the internist is very good indeed- very similar to the one posted earlier - the only thing that confuses me is the addition of oranges and grapefruits. I have been told by both Eastern and Western doctors that they are contraindicated for inflammation
I have not eaten them in years .
Then again what do I know

Next on my "to do " list is QiGong -It is a very gentle practice and it is shown to have very beneficial effects on the immune system -incredible in fact -
healing properties.It has cured people !
You should research the practice !
Often there are free classes in many community centres

Peace
GnP

PS I reread the above diet and it is called fat resistance which is probably why grapefruit is added .We have all heard of the grapepefruit diet.

Alot of what GnP and Jo are saying makes a lot of sense. After eating wrong over the holidays I ended up with a bladder infection and I am sure I am dealing with inflammation throughout my body now. I have also been eating a lot of oranges and grapefruit so there might be some truth to the theory on that too.

Another thing is the tea, I drink tea last night and it was decaf and it started my bladder pain again. I am slowly figuring out what I can and can't eat and drink. I am not big on sugar but I do use the sweeteners. My Dr. has asked me switch to Splenda but it's so expensive.

I have no doubt that a diet is important for the pain to be kept in check. If a person wrote down the foods they ate that they don't usually eat then they could soon figure out what not to eat. When we get stomach problems the one thing a Dr. always ask is what you had to eat that day.

This thread is a good reminder for me.

Thanks,
Ada

Alot of what GnP and Jo are saying makes a lot of sense. After eating wrong over the holidays I ended up with a bladder infection and I am sure I am dealing with inflammation throughout my body now. I have also been eating a lot of oranges and grapefruit so there might be some truth to the theory on that too.

Another thing is the tea, I drink tea last night and it was decaf and it started my bladder pain again. I am slowly figuring out what I can and can't eat and drink. I am not big on sugar but I do use the sweeteners. My Dr. has asked me switch to Splenda but it's so expensive.

I have no doubt that a diet is important for the pain to be kept in check. If a person wrote down the foods they ate that they don't usually eat then they could soon figure out what not to eat. When we get stomach problems the one thing a Dr. always ask is what you had to eat that day.

This thread is a good reminder for me.

Thanks,
Ada

well hehe - I never said I followed any diet. Still looking for the perfect one I guess LOL.
I had the eat right 4 your blood type book for yrs and just got the Fat Resistance one a month ago.

I usually pick & choose what parts of eating plans that I want to use and file the rest.

But the inflammation mention {for whole health} in the Fat Resistance plan made me think to mention it here.

Desi,
I definitely agree on the Fake sweeteners and fake margarine and all the "imitation" or "diet" foods {aka chemicals}.