Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-04-2008, 09:07 PM #9
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Join Date: Oct 2006
Location: Greene, NY
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RSD_Angel RSD_Angel is offline
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Join Date: Oct 2006
Location: Greene, NY
Posts: 153
15 yr Member
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HI guys,

I am feeling better!! double cheese burger always does it along with pepsi and choco!! lmao..

Marla,

I have 2 stim's implanted!!! I have a spinal cord stim that was implanted 2003 and I also have a peripheral nerve stim thats implanted in my RSD thigh and connected to my sciatic nerve and that was implnated in 2004 or 5.. cant remember with out going back and looking at my ID cards. They both stoped working about 5 mos into having the perm one put in. I had the SCS revised 2 times and my doc just said i was the 1% of the population thats nerves reroutes itself around the stim.. which makes the stim null and void.. my luck huh!! and the PNS just goes to the knee and not to the foot where the worst of the RSD is. Well now that its gone full body they wont work anyhow.. grrrrrr I have had RSD now for 6 years and have tried anything he was willing to do!! even botox!!! Im just tired of being in pain and not haveing any control over it and him not willing to give me stuff i obviously need!!


Amber

PS I needed to laugh thanks for all the opps!! thought i only did that kind of stuff!!
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