Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-07-2008, 08:07 PM #15
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Join Date: Oct 2006
Location: Greene, NY
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Thanks Ada!!! I appreciate your words and I take them seriously bc you have gone through this!! I am just lost and found one doc that might see me but i have to send him a whole bunch of med records and then they will make thier decision!! grrr. so i am in the process of deciding to call my current PM doc or do i send the potential new one the records i have..lol. I also made a call to anther pain clinic that is about an hour away ( none closer thenthat) and they asked me about my RSD what treatment.. told them that i have 2 stims and the oral meds im taking are not helping and my current doc doesnt know what else to do . And she came back with, "well.. i dont think we can help you either since you have 2 stims and they dont work".. I was like well can there be other meds to try .. and she then again came back " I am assuming you have been on narcotics and since the stims dont work we cant give you anything stronger then what you are prob are on. " I asked if they treated patients with Ketamine or Methadone, and she was like , " well im not sure but i dont think we have any patients now and it will be very unlikely tht if i were seen that i could get them" I hung up and cried for about an hour and was like.. what the heck am i going to do.. and why me...

I have heard in the past from other docs that if i were to switch docs that i would have a heck of a time getting one to see me since i have 2 stims in me and meds are not working. Docs dont like touching another docs patients is what they said... soo??? Im lost...


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