Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-08-2008, 10:40 AM #11
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Kitty,

Welcome to the group. You will find a lot of support and help here.

I agree with Vicc. The sooner you can accept the diagnoses and learn about it the sooner you will be able to start tackling it with the right Drs. Anesteolgist or PM's for blocks to help put it in remission. Ask your Dr. about giving you blocks right away to see if it will put it into remission.

I was already messed up before RSD but I had trouble accepting the fact that I couldn't go back to work years after I became disabled.

I hope things work out for you and that you do get the help you need.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote

advertisement
Old 02-08-2008, 12:38 PM #12
kittygato's Avatar
kittygato kittygato is offline
Junior Member
 
Join Date: Jan 2008
Location: Ontario, California
Posts: 19
15 yr Member
kittygato kittygato is offline
Junior Member
kittygato's Avatar
 
Join Date: Jan 2008
Location: Ontario, California
Posts: 19
15 yr Member
Default

Quote:
Originally Posted by Vicc View Post
Hi Stephanie,

From amother post you wrote, it appears you were injured in November, and averyone will have suggestions about what you should do when an injury is that recent. I think it would help all of us if you could explain your symptoms in more detail, just about all of us divide RSD into two stages, and agree that early and aggressive treatment is essential.

Any changes in skin color are important, as is the kinds op pain, does the skin burn or sting; or hurt inside? Does cold affect your RSD? Does heat? Is there more than one degree temperature difference between your affected and contralateral (opposite) limb? Have you noticed any changes in your hair or nails?

I'm a firm believer in early and aggressive intervention, and what you tell us about your signs and symptoms will help us formulate our replies. I know it will help me figure out what to say...Vic
It is definitely the early stages of something as its only been 3 months. My hand gets hot and/or cold at random. When it's really bad, it turns a light shade of blue/purple. My hand gets hot even when my arm is cold, or even the other way around. I have had increased hair growth on my arm. And have also noticed that my nails grow so fast on that hand that I cant keep up with simple filing. My hand does sting and it does burn. Sometimes, it is so sensitive that any blanket or fabric hurts.....
__________________
Stephanie - owned by 3 retired greyhounds
kittygato is offline   Reply With QuoteReply With Quote
Old 02-09-2008, 04:56 AM #13
tayla4me tayla4me is offline
Member
 
Join Date: Feb 2007
Posts: 486
15 yr Member
tayla4me tayla4me is offline
Member
 
Join Date: Feb 2007
Posts: 486
15 yr Member
Default

Dear Stephanie,

I really hope you can find a Pain Management team which will initiate treatment sooner rather than later.
Your symptoms sound as though they could really benefit from a Stellate Ganglion Block or a series of them.
You are at a perfect stage to really get great results and even a cure.
There is a program called Graded Motor Imagery and Mirror Imagery that is being done by some physiotherapists who have a special interest in RSD, this stops the brain remembering the pain and helps to keep from getting atrophy of your arm.
I wish you lots of luck and early intervention.
Love Tayla
tayla4me is offline   Reply With QuoteReply With Quote
Old 02-09-2008, 10:32 PM #14
hopealot hopealot is offline
Junior Member
 
Join Date: Jan 2008
Posts: 13
15 yr Member
hopealot hopealot is offline
Junior Member
 
Join Date: Jan 2008
Posts: 13
15 yr Member
Default

Yay and yipee for the early diagnosis!! This does significantly improve your chances of healing. Hoping with you for full recovery!
hopealot is offline   Reply With QuoteReply With Quote
Old 02-10-2008, 12:58 PM #15
Sandel's Avatar
Sandel Sandel is offline
Member
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Sandel Sandel is offline
Member
Sandel's Avatar
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Cool late welcome

Hello Kitty
Welcome to NT
I would like to sugest that you start taking some antioxadents right away, grape seed extract (GSE) or Vitimin C, and alot of antioxadent food and drinks.
They have recently found in clinical trials that Vitimin C can stop CRPS from happening in alot of cases after a break. It may help you hugely being so early diagnosed and it can't hurt to try.

hugs
Sandra

(talk to your doctor about it)
Sandel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Imahotep (02-10-2008)
Old 02-10-2008, 11:49 PM #16
Imahotep Imahotep is offline
Member
 
Join Date: Feb 2007
Posts: 606
15 yr Member
Imahotep Imahotep is offline
Member
 
Join Date: Feb 2007
Posts: 606
15 yr Member
Default

I've had good effect with ghinko biloba but it's said this stuff is pretty strong.

I also try not to make too many changes at once so I can tell which is causing what.
Imahotep is offline   Reply With QuoteReply With Quote
Old 02-11-2008, 10:50 AM #17
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Thumbs up Denial.. shoot.. ya! LOL

Hi ya Stephanie!
Best believe your "boots' I was in denial. First of all, I DID NOT KNOW WHAT RSD was until I did much research and then found this wonderful board, no.. it is not advice to take at "heart".... only a Doc. can give ya the right meds, advice concerning blocks, physical therapy etc. hang in there, read as much as you can get you hands on!! Love, ~Desi
Quote:
Originally Posted by kittygato View Post
Did anyone else have issues with accepting the RSD diagnosis? I have heard it from two doctors and yet, I refuse to accept it. Did anyone else experience this same thing?
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
LTD is in denial SBGUY Peripheral Neuropathy 13 11-29-2007 05:18 PM
Got official LTD denial fanfaire Peripheral Neuropathy 11 11-03-2007 09:35 PM
a side trip to Philly;denial over and what Dr. S said Goodn'Plenty Reflex Sympathetic Dystrophy (RSD and CRPS) 27 07-20-2007 11:43 AM
denial of rsd siccy Reflex Sympathetic Dystrophy (RSD and CRPS) 11 02-08-2007 08:03 PM


All times are GMT -5. The time now is 06:30 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.