Hey there Ms. Debbie...remember me?. I read that hormones did play a big role with increased pain at the time of the cycle. I remember reading it in a medical magazine at my Pain management Doctors office last year and discussing it with him. Sorry I don't remember the magazine but it did say they were continuing to do research regarding it.

Sorry your are going through all that your describing. Hopefully things will get straighten around for you and you will get some relief. Love, love, love our insurance companies though. I'm sure your Doctor is doing the best he can do for you right now other wise I know you would be looking for a new one. Take care...
Hugs, Jewells

6 Kids?!?!? Tayla....all I can say is ... better you than me! ... The two I have is way plenty! Here you can keep them on your private ins. until 18, or out of college. So that's ok.

And I do agree...if men had a monthly visitor...things would definitely be different....laffs...we'd have one week off a month with pay for our periods...

Hi Loretta,

It's nice to meet you to. Those smilies can be fun

Thanks for sharing your story about your female issues. It's always good to hear what the outcome is for others. Helps me make a better a choice in what I should or shouldn't do. I do know that any surgery puts me at a higher risk for the RSD to spread, and that's not something I want to happen. I worry about that more than anything. I have kept it to my arms/shoulders/upper back...for this long...I sure don't want it to go any further than it has already...

I just hate that 'that time of the month' causes added swelling and pain to my arms...

At least I can look forward to not having that increased body swelling and pain in the RSD arms...once I do have something done to stop the monthly visitor...

hugs Loretta...

Debbie

I had a hysterectomy in 95 due to fibroids and other problems. The Dr. I had was suppose to do a complete one due to all my problems. He decided he'd leave one overy in that wasn't any good. So in 2001, I had to have the other one taken out along with a lot of scar tissue and ended up with RSD in that area. The hospital where I had the surgery knew nothing about blocks and still don't or I would have had one the last surgery. It turned out my other Dr. said the overy most likely wasn't any good and should have been taken out at the first surgery. Now I am paying for a Drs. mistake. This Dr. also got ran out of town not long after my surgery also.

It's hard to know what to do to deal with what is going on with you. Any surgeries though I would ask for a block first.

I'm glad to see Jewell's also. I have wondered many times how you were doing?

Ada

Ya know Ada, I didn't even think about blocks. I'm glad you mentioned that. But who do I talk to about that? The pain doc? or the gyno? Who would do that? would that be something to be paid for by wc? Or my ins? ugh..this all sucks.

Do you think I should ask for blocks for the burning/freezing...should I do one or the other? There is no cutting...just destroying the lining...ugh...this is all so stressful.

I'm so glad I have you to ask all these questions

Hugs
Debbie

hi Ada...(Debbie sorry for taking over the thread here for a min.) I am doing okay. I still have problems with the sciatica in the non-rsd leg. Still taking my methadone and epidurals every eight weeks. Tried radio frequency lesioning for the sciatica but it didn't work. Only thing left for me now is a fusion of L2-L5 to help with the pain so they say.

I stop by at least once a week to see how everyone is doing. I did email you a while back, I do believe it was a PM but I really can't say it was a while ago. Even though I don't post I do say prayers and think about everyone.

Debbie you should start with your gyno about the blocks. If he/she doesn't know about them maybe they can recommend them so w/c will pay for it? that's just my suggestion. You know we always have to play little tricks to have things covered with insurance companies.

This weather is killing me so off I go to do something to keep my mind busy.
Hugs, Jewells

Hi Jewells,

Girl you know I don't mind at all if you take over in a thread, heck, we are females after all, we ain't got a clue how to stay on topic...laffs...we need some white picket fences to stand on each side n gossip...hehehe

I'll make sure to talk about blocks with the gyno when I see him next time. So I can get that worked out to.

Girl our weather here is nuts to. Snow and freezing one day, and then hot the next day. Today we hit 78 degrees!! Tomorrow we are to get major storms with temps dippin to 31 over night...this is just nuts, someone ****** mothernature off! laffs

Hugs girl!

Debbie

I wanted to answer the one question on blocks. I usually tell the surgeon when we talk about the surgery that I would like a block. When I get in the surgery room I tell the Anesteologist since he is the one that will do it. The ones I have that have done the blocks before my surgeries have been great. They have all been up to par on RSD.

As far as a hysterectomy. This is my honest to goodness thought. I went through this same damn thing. In 95 in Ky. At the U of K. They got all the way to planning my surgeryfor a hysterectomy and then they said that they had changed the law that it could no longer be done unless it was a dire emergency. It took a few more months for them to figure out it had to be done and they did it. All but taking out that one overy. I was so mad about that. In 2000 it had to be taken out anyway because it wasn't any good, along with scar tissue. The hospital here doesn't do blocks so that's what got my RSD going in 2000 with that last surgery in my pelvic area.

My thought would be, I know you love this Dr. but I honestly would go to another one or two and see if you can find one that will do the hysterectomy. They are out there and odds are it's not the law it's what kind of insurance you have. The kind I have they don't want to do a damn thing they don't have to.

As far as freezing and burning, what I had done when I had my tubes done is cut, burned and tied and ended up with an etopic pregnancy. So the burning did nothing to help me. As far as the freezing, I don't know about but again I would want to know what the odds are it will do the job they are saying it will. There is definately no guarantee that it will end your pelvic pain, because it didn't mine. Now I have other diagnoses besides the RSD. I have the IC, the PCS and a few other things.

I think we are prone to all of these things due to our systems being so messed up.

I do hope you find the answers soon.

Jewell's, I don't think I got your PM. I am glad to see you back and that you are. I have back and neck problems and spent time in PT and would go back to it if I became bedridden again before surgery. Bill had back surgery when he was younger and did great though. It's always a toss up. I do know weight makes a difference on your back. If you are heavy set it is harder to get well from it. Bill always weighed just 130 to 150 so he was able to do very good with his back surgery. He was in the hospital with a guy that was on his 5th one and he said it was due to his weight and so did the Dr. I think weight problems add to any health problem though.

I am glad you found us girl. As I said, I have thought of you often.

Ada

PS- Temp here today 35 degrees C----I think that is about 101 F. No packing the pool equipmant away yet.






Debbie,
I think it is a good idea to have some type of "Sympathetic calmer down" before any sort of fiddling with our anatomy.
I don't know whether your doctor does anything with Ketamine but I have a booster dose before I have anything done that involves getting into uncomfortable positions etc. This has always kept me from flaring after.
The problem with your procedure though is that your doctor would probably have to arrange to have it in a day theatre unit rather than his rooms (I think you said you have it in his rooms?)so he can include an anaesthetist in the procedure.
Cheers
Tayla