This one is for the ladies, do you all notice an increase in pain with the RSD when its that time of the month? I notice when I have a lot of swelling....water ...from my period....bloat...as some might call it....that my RSD pains are more intense....

Anyone else?

Debbie

Hello,

Me too I think it is because of a couple of reasons, one being hormones and their affect on the limbic system which is out of whack with RSD/CRPS and the extra fluid we get that causes our bloating pressing on our already sensitive nerves.
Who'd be a women hey?

regards
Tayla

I'm glad I'm not the only one this effects. I hate that time of the month. It drives me nuts. I have way more pain it seems durning that time. Of course when the weather is extremely hot or extremely cold, I have increased pain. I wish someone would find some answers and fixes for us. This bites


Debbie

I used to have increased pain during my period. There's a family history of fibroids which make your periods really long, heavy and irregular. And then I developed a blood clotting disorder and was put on coumadin for it. This made my periods CRAZY! I couldn't leave the house because I was bleeding so much. The first period I had while on coumadin (a blood thinner), I thought that I was going to die from bleeding to death! So I went on Depo-Provera for birth control and to stop my periods. I don't get my period anymore, which is wonderful! And it wasn't the reason that I went on the Depo, but I don't have that predictable flare-up every month. It keeps your hormones constant. And hey, one less thing to think about! And by the way, medically you don't NEED to have a period. When they developed the Pill originally they weren't going to include the week of blank sugar pills that induce a period, but the women that they tested it on were so freaked out by not having a period that they but in the week of blanks. (Or so they claim- the Pill was developed by MEN! )

So if the pain is really bad, check out either taking the Pill continuously (omitting the week of blanks) or Depo-Provera. One shot every three months. It really works for me, and you don't have to remember a Pill every day.

Linnie

I have been having serious heavy periods. Back in October I started around Oct. 4th and did not stop until the end of November. I had several test to find out what was going on. I was givin the option to either burn or freeze the uterus, and I chose to have it frozen, however the ins. wouldn't pay for that. So I'm tryin to hold off until they will allow me to. I have sent in many request to them to allow this. It's just really causing a lot of pain in my RSD arms from the swelling of the body from the cycle, and when it lasts for weeks, instead of days, it's really annoying.

Debbie

Make them put you on Depo or something like it to try to stabilize you until you can have your procedure! You shouldn't be having periods that are that long- it can be dangerous! My mom started having out of control periods and she had several DNC's to try to eliminate them. They didn't work- the fibroids kept coming back and she eventually had to have a hysterectomy. (Her last fibroid was the size of a football- it couldn't be removed safely.) But they put her on birth control to try to reduce the size of the fibroids and reduce the bleeding during her periods. When you say burn or freeze the uterus, do you mean the whole thing, or just the internal lining to eliminate fibroids?

Linnie

Hi Debbie and Linnie,

I, too, had heavy periods and pain due to fibroids. I tried the DNC that didn't correct the problem. I then decided to have hysterectomy and keep my ovaries if they were healthy and they were. As is turned out, the surgery was done by laprecope (bad spelling) The recovery time was so short comparied to my C-Section by our one and only child. As it turned out, I got RSD two years later the day ofter Breast surgery. Of course, it took lots of pain and lots of Drs. to get it diagnosed. I hope whatever direction you go,
works out well for you. I'm still trying to figure out how to make the icons work in the right spot. I just realized why to may want the freeze,
so you don't get RSD in your uterus from surgery. I'm curious if the way I had it done doesn't constitute surgery with risk of RSD???

Lots of soft hugs, loretta

Hey there Ms. Debbie...remember me?. I read that hormones did play a big role with increased pain at the time of the cycle. I remember reading it in a medical magazine at my Pain management Doctors office last year and discussing it with him. Sorry I don't remember the magazine but it did say they were continuing to do research regarding it.

Sorry your are going through all that your describing. Hopefully things will get straighten around for you and you will get some relief. Love, love, love our insurance companies though. I'm sure your Doctor is doing the best he can do for you right now other wise I know you would be looking for a new one. Take care...
Hugs, Jewells

6 Kids?!?!? Tayla....all I can say is ... better you than me! ... The two I have is way plenty! Here you can keep them on your private ins. until 18, or out of college. So that's ok.

And I do agree...if men had a monthly visitor...things would definitely be different....laffs...we'd have one week off a month with pay for our periods...

Hi Loretta,

It's nice to meet you to. Those smilies can be fun

Thanks for sharing your story about your female issues. It's always good to hear what the outcome is for others. Helps me make a better a choice in what I should or shouldn't do. I do know that any surgery puts me at a higher risk for the RSD to spread, and that's not something I want to happen. I worry about that more than anything. I have kept it to my arms/shoulders/upper back...for this long...I sure don't want it to go any further than it has already...

I just hate that 'that time of the month' causes added swelling and pain to my arms...

At least I can look forward to not having that increased body swelling and pain in the RSD arms...once I do have something done to stop the monthly visitor...

hugs Loretta...

Debbie