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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | |||
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well lets see... first i was msdrea83, then i got kicked off cause of some idiot, then i was lildevilrsd.... so i went back to my original name!
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~*Andrea*~ |
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#12 | |||
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Junior Member
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![]() I'm not up to speed - what happened that caused this new board to take over -tho I notice the old board is still there? ![]() |
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#13 | ||
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I was thinking of you coupla days ago ![]() ![]() all the best |
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#14 | ||
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Well, you found us, that is great. Basically the old board went down for 3 months over the summer, with no updates. We were offered this site by the good-hearted DocJohn...and seem to have kinda stayed, although many people post between the 2 forums. If you go back to the early pages in Forum Feedback on this site (most of the relevant threads in FF at the hastypastry site have been deleted by mods I think..) you can read the history (be warned, it is quite a long and painful read!)...but that is it in a nutshell... Amazingly, nearly everyone seems to have found us and this is a really wonderful board. So glad you joined the gang ![]() all the best.. |
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#15 | |||
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Hi!
I used to be Joselita...and I still am! ![]() I don't know what I would have done if I couldn't gone by that screen name. I have been being Joselita in some form or fashion on the net for about 1/3 of my life so far. ![]() Sage Sweetie...I am soooooo glad to see you here! ![]() ![]() ![]() ![]() ![]() If however you still want to do that...look for closed threads. There got to be so many going on at one time, that DocJohn said there could only be ONE thread going on about BT (aka OBT or Original Brain Talk, since this place used to be called "Braintalk 2"). So, look for closed threads, and titles of threads that say something about "BT" in them. WARNING, though....there is LOTS of hurt feelings, and fighting among the members of the different sides of the schism that has occurred. Anyway..I wanted to let you know how HAPPY I am that you found us here. I am so glad! ![]() ![]() ![]() ![]() ![]() OK...I am babbling, so it is time to go. LOL I hope that my link to that "Summary" helps. Love and ((Hugs)) Jose PS Link takes you to Kathy's thread. You have to scroll down to find my post. Sorry..I have never figured out how to post links to JUST a certain post within a thread.... Last edited by Joselita; 10-23-2006 at 10:46 AM. Reason: Checked link....and added the PS. |
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#16 | ||
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![]() Well, on BT1/OBT I am *not me!!!*. Someone pinched my name - ok, it's artist not the artist, but goddammitt ![]() ![]() ![]() ![]() ![]() ![]() ![]() Must have happened to quite a few people, with having to login again. Ah well, never mind-------> grumble grumble grumble all the best ![]() |
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#17 | |||
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i'm doing alright... i just got back from a cruise to italy and greece... its so what i needed! but when i got back home the weather had started to turn chilly so my pain has gone up... maybe i should go back! lets see.... i'm no longer being seen at stanford, my insurance changed and they pretty much booted me out of the pain program, so i'm seeing a local pm here who has continued my oral ketamine, it helps when i take it but i do get rather... intoxicated when i take it. sometimes i feel like i'm drunk, i space out a lot, get side tracked easily, if i close my eyes sometimes i still feel like they're open but i'm in like another place.. its really weird. and then when my eyes are closed i sometimes feel like i'm floating.. i dunno its weird. i had my stim removed in july... that went very well. i was out at my friend's show like 4 days after, granted it was at a roller rink so it wasn't like i couldn't sit and there weren't like people banging into me. my pm now is trying cold laser treatment on me... its not really doing anything but getting my arm warm... its supposed to have the same effects as blocks... but i had no relief from the blocks so i dunno... i'm back assisting in dance classes. as much as i can. i go to court this thursday for disability. so keep your fingers crossed!!! other then that, i mostly go to my friends' shows and take pictures.... i'm glad to be back in cali that's for sure. the town i live in is in santa cruz county, its like 10 miles from santa cruz... but nobody ever knows where it is so i just say santa cruz!
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~*Andrea*~ |
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#18 | ||
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Yappiest Elder Member
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me think jose mentioned choccy
![]() ![]() ((((hugs)))) Curious Last edited by Curious; 10-23-2006 at 11:54 PM. Reason: :D added the S for andrea...so she can have more than one. |
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#19 | |||
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Member
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how could i resist one?! thanks! yum!!!!!!!!!!!!
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~*Andrea*~ |
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#20 | |||
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I am still Sandel Sandra actualy and I have sure missed you guys lots.. (found you found you happy dance)
The research capacity alone of our group before was phenominal, and I had so hoped to see more of the same somewhere.. I just dint think I'd find my origional research team lol.. An I have worried about you all wonderin how yr doin.. I will do some reading and catch up soon.. I too have been dealing with spread and I have organ involvement happinin that is pretty scary, wonderin if anyone has any first hand knowlege.. My doc as usual thinks it is something else been through alot of testing, going for MIBI test tomorow down island.. soft hugs all around, sandra |
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