It's been a long time since we talked. I am thrilled to know that you are doing well.

I'm doing ok. The back surgery I had in 2005 complicated my RSD situation.

Go for it girl!! Pam

Hi Im Melody,

I was so happy to read this. My son has RSD (he just turned 21) and it breaks my heart. I have been trying to get him to consider HBOT. I am going to have him read this note from you. I will probably have some questions later on.

Thank you for writting this.

Melody

Pam,
Glad to hear from you. We will talk soon. I'm down with the flu. So I have to be brief. Look forward to catching up.
I hope you are well.
Diana


Melody,
So sorry to hear about your son. I have heard the pain of other mothers whose children have RSD and it is always heart breaking. As I said in the note to Pam I'm in bed with the flu, but I certainly would be glad to hear from you or answer any questions. Look forward to hearing from you.
Diana

Diana I can not thank you enough for sharing all of this - so so thrilled for you that you are near to pain free- it is just so thrilling it is possible.
Diana- I have had a very diffucult time getting a script for this here in florida. the ones attached to hospitals cant take you as RSD is not approved on their list. The ones that are not attached to hospitals do not take insurance.
But I would pay anything I could if I thought it was safe. I guess I have two questions, are the independent ones safe? And may I ask why you had to begin in Canada? I didnt know if you lived there or had to travel there for treatment? Thank you again so very much ! Sincerely, CZ
Ps I have had the coma treatment, which was very sucessful however did not last.my full body rsd returned.

CZ,
I did my first HBOT in Canada, for several reasons. One, It was less expensive than the US. You stay in a facility, with access to a kitchen, fix your own meals, and pretty much take care of yourself. You can take a care giver with you. This was cheaper than treatment in the US, plus, hotels and food. Second, the owner has a daughter who had RSD, and if I remember correctly Cerbal Palsy, he is also a scuba diver and pilot, so I felt comfortable that he knew what he was doing. Thirdly, it did not require a prescription, but I paid out of pocket. I can not say enough about this place. They are amazing, they treat children from all over the world, with Cerbal Palsy, stroke victims, MS patients and you get a first hand view of what HBOT treatment can do for people. I also got to watch how physically challenged children and their families live each day counting every little improvement they see as a most amazing blessing. I think there are probably a lot of fine HBOT centers in the US, and I believe they have doctors on sight to write the prescriptions for treatment, after an examination. Will insurance pay for it with RSD as a diagnosis, probably not.
Just to purchase oxygen I have a prescription for
" Physically fit Hyperbaric Oxygen Therapy " (experimental) That is how the prescription reads. It has taken years for me to get to this point. I had been diagnosed with 4 extremity RSD since 1989. I feel that if I had been given HBOT sooner I may have had faster, better results. I guess I'll never really know. I'm just happy to be where I am at this point. I hope I have answered some of your questions. Please feel free to ask again, if I missed anything or something new comes up, I do wish you the best. Diana

Hi Diana,
Thanks so much for sharing your hyperbarics/rsd history. Like you, my 16-year-old daughter benefited immensely from hyperbarics. Over the course of many months she received 75 high pressure treatments in a clinic setting. She was painfree after her 22nd treatment; but what we found was that within 6 to 8 weeks of stopping treatments, her pain would return. We would then have to pack up and travel five hours from home so that she could receive boost treatments.

Last August we purchased a "mild" chamber for our home, and it has done a great job of maintaining her. It is unfortunate that the logistics of receiving treatments can be complicated and that the cost is often prohibitive, as I know hyperbarics could help so many people. Keep spreading your story ... it is a very important, life-changing message!!
Jeanne

Jeanne,
I am always pleased to hear than someone has good results with HBOT. I also think you are right, it is an important message to get out. My dear friend Vic Collins has been sending this message out for years. He was really instrumental in my efforts to get treatment. Everyone should read his posts.
I hope you and your daughter are doing well. Thank you for sharing. Diana