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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Member
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Hi there..
Does anyone know how a Canadian would go about getting ketamine coma treatments in either Mexico or Germany.. who would we need to be refered to first etc.. Thank you so much for any advice you can give on this subject. Sandra |
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#2 | |||
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Elder
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Sandel,
There may be others but I know that Dr. Schwartzman in Philadelphia at Drexel University refers to Germany and Dr. Kirkpatrick in Tampa, FL refers to Mexico.... I haven't heard of any other doctors that are doing Ketamine Coma Referals. ![]() Abbie
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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"Thanks for this!" says: | ALASKA MIKE (08-09-2009), ali12 (03-22-2008), Dew58 (08-10-2009), loretta (08-10-2009), Sandel (03-18-2008) |
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#3 | |||
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Elder
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Dr. Robert Schwartzman
Chair Neurology New College Building 245 N. 15th St Philadelphia PA 19102 Phone: 215-762-7090 Fax: 215-762-3161 Email: robert.schwartzman@drexelmed.edu Dr. Anthony Kirkpatrick http://rsdhealthcare.org/PatientInfo...ntact_Info.htm
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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"Thanks for this!" says: | ALASKA MIKE (08-09-2009), ali12 (03-22-2008), Dew58 (08-10-2009), loretta (08-10-2009), Sandel (03-18-2008) |
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#4 | ||
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the information above is absolutely correct. Just call dr. Schwartzmans office and tell them you are interested in teh coma treatment and ask for an appt with dr. s. thats how you start it out. good luch cz
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#5 | |||
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Member
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![]() Thank you so much both of you. |
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#6 | |||
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Elder
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You are so welcome Sandel!!
I wish you well!!! I tried to get on the wait list with both doctors but was told at this time I am not a viable candidate for various reasons... ![]() ![]() Abbie
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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#7 | |||
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Member
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Hi Abbie..
I think perhaps with my heart being involved I would not be a good candidate either, I am gathering the information for another friend who lives here in Canada, she would possibly be a good candidate. I gave her the info provided here thanks again. I hope you are having a nice weekend with low pain days my friend, ![]() Sandra |
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#8 | ||
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Member
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Hi Sandra,
I hope you are doing well. I have been in terrible pain. I can't wait until the cold is gone. I don't know how you handle it in Canada. I saw your posting about your friend with RSD and thought I would add my two cents. I know you have to have at minimum $30,000.00 U.S. Dollars in order to have the treatment done in Germany. I don't know if your friend's present PM doctor can refer her either. You may want to research Ketamine Coma treatments in Germany for RSD on the Web and see what shows up. I did that before and found out the city they do it in but I can't remember it now. Best of luck to your friend and I hope and pray the both of you are feeling better. I've been down in the dumps too. I think it is the time of year for everyone. I just want to feel somewhat "normal" if you know what I mean. I can't believe I have been in this horrible pain for over 3 years now and it never lets up 24/7. I find it totally amazing. I hope you are doing well. Take care, kathy d Quote:
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#9 | ||
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Junior Member
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Sandra,
The info on Dr. Schwartzman and Dr. Kirkpatrick is accurate to some degree. The coma in Germany is done in Saarbreucken at the Klinikum Saarbreucken. The piece however that is missing is that the program in Germany is temporarily on hold. They are talking about restarting, but so far that has not happened. I've had the coma twice and the second time, I was the last person to be put into a coma before the shut down the program. As for Dr. K, he is the one to go through to get the treatment in Monterrey, Mexico. Dr. Cantu is the doctor in charge in Mexico. I don't know about Dr. K b/c I've never seen him, but Dr. S has about a three to four year waiting list for appointments and a two year waiting list for the coma. As far as costs, you need at least $30,000-40,000 expendable money and then you need another $10,000-15,000 in credit. I'm not sure on the exact costs of Mexico. The first time I went, we spent $80,000 but that was b/c I got staff infection pneumonia and was in a coma for 3 weeks, so we were there for a month and a half. As for the second time, I was in and out of the hospital in less that two weeks and I arrived home only three weeks after I had left and it cost us $60,000. If you need any further info, feel free to let me know. |
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#10 | |||
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Member
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Something *that* experimental and you have to PAY that much for this? I would have expected a small fee (to help cover expenses) in order to participate (a fee they pay you).
The Ketamine/Coma treatment is about the only "treatment" that isn't yet considered a valid way to treat. It hasn't been approved. It's highly experimental. So to have to pay THAT MUCH for what is in fact a major experiment. OMG! WTH?! I mean, where are the patients that participated in the study for this treatment? They have done a study, right?
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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