Oh Desi, I really feel for you. Having been to all kinds of docs and having all kinds of tests done for my legs and nothing significant found that would cause the pain & swelling for me, I do hope that they can find something that can be treated. (I know that sounds bad that I hope they find something but I mean I hope they find something that they can fixed versus it being RSD) It was very difficult for me to accept the RSD diagnosis (I guess I was in denial) & my PM kept sending me to specialists. I don't think my swelling is nearly as bad as yours is. Personally, I won't consider the SCS & my PM doesn't even bring it up anymore. Don't know whether it's because I'm scared, in denial or still hope that something else less invasive will come up. I did start the fenzian treatments Monday. I have hope with that.
Please keep us informed as to what the test results are.
Hugs & prayers,
Linmarie