Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-21-2008, 02:04 AM #1
Linmarie Linmarie is offline
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Default Terrible Flare

Hi everyone,
I've been thinking about you all and wondering how you are doing but haven't been able to sit down at the computer. I am having a terrible flare up in the sacro area so I've spent most of the last 2 1/2 weeks in lying down. After sucking up the pain as much as I could & trying to do the necessary things in life to get by I finally broke down today and spent the afternoon in bed crying. I just can't take this pain anymore. It feels like someone has a knife in my sacro area and is twisting it. I can't get in to my PM for an injection for another week and a half and won't go through the ER thing again. So I turned to the "legal" drug and had a couple of glasses of wine. Remember reading somewhere that alcohol is a vasodilator. Anyway, I slept for a couple of hours and am sitting at the computer which I couldn't do earlier today. I am just so sick and tired of how the medical community treats those of us with chronic pain - like we're drug seekers or crazy or just trying to get attention or whatever. And those people that are so anti-drug. If they had to live with my pain for a month they would be begging for drugs.
Anyways, this pain flare has just totally worn me down physically and mentally.
Linmarie
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Old 05-21-2008, 02:07 AM #2
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So sorry for your awful pain, Linmarie. Hope you get some relief very soon.
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Old 05-21-2008, 03:46 PM #3
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Default Hi LinnMarie,

I PM'ed you.

I do hope you are feeling better. I guess we have to find any way we can to help with our pain. Drinks help relax so maybe it relaxed you enough to help the pain ease up.

I hope you continue to feel better. I do know why you feel like you do about the ER. My Dr. finally told me not to go back at all. I finally had to go in an ambulance in April of last year and laid there for 7 hours without seeing a Dr. I walked out around 11 with their gown on. I wouldn't even take the time to change. I kind of wonder if they thought I hadn't over medicated on my meds and just wanted to give me time to throw them all up. I hadn't taken any that day.

We all have stories about ER's don't we?

Feel better soon.
Ada
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Old 05-21-2008, 07:56 PM #4
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Awwwwwwwww.. LinMarie,
I feel so bad to hear that you stayed in bed just crying away!! Yes, this pain is awful!! I feel so bad and I mean that from the bottom of my heart. I know what you mean by people that are so "Anti drug and if they had to live with this pain, they would be begging for them". So far, my family feels very badly with what I have to endure. My oldest sister told me how her sister-in law who has RSD is anti drug and she is sticking the pain out!! I told my sister, she must be "Super woman" or something to not want any kind of pain med. for what most of us have to feel! Well, sweetie, your in my prayers and I am hoping that a tad bit of your "legal drug" helps you get through this. I heard the same thing about wine being a vasodilator too. Are you taking any thing for this pain at all? If not, you should be Linmarie! I am thankful to have a Dr. who will give me pain meds and he will also let me be in, what I have to say, need and such. Well, please know that I care and am always here for you. ~Love, Desi
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Old 05-21-2008, 10:37 PM #5
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I hope you feel much better very soon.
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Old 05-22-2008, 06:38 PM #6
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Hi am sorry you are not feeling well, but you are absolutely right. I hate having this much pain and being made to feel like a drug addict every month.
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Old 05-24-2008, 04:17 PM #7
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Quote:
Originally Posted by Linmarie View Post
Hi everyone,
I've been thinking about you all and wondering how you are doing but haven't been able to sit down at the computer. I am having a terrible flare up in the sacro area so I've spent most of the last 2 1/2 weeks in lying down. After sucking up the pain as much as I could & trying to do the necessary things in life to get by I finally broke down today and spent the afternoon in bed crying. I just can't take this pain anymore. It feels like someone has a knife in my sacro area and is twisting it. I can't get in to my PM for an injection for another week and a half and won't go through the ER thing again. So I turned to the "legal" drug and had a couple of glasses of wine. Remember reading somewhere that alcohol is a vasodilator. Anyway, I slept for a couple of hours and am sitting at the computer which I couldn't do earlier today. I am just so sick and tired of how the medical community treats those of us with chronic pain - like we're drug seekers or crazy or just trying to get attention or whatever. And those people that are so anti-drug. If they had to live with my pain for a month they would be begging for drugs.
Anyways, this pain flare has just totally worn me down physically and mentally.
Linmarie
Im so sorry to hear that your feeling badly. Know that you are not alone in your feelings. We are all with you my friend,
Gentle hugs to you my friend~~
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