:sorry Hey guys,
Sorry it took me so long to get back with u.I have had a lot going on.I graduated from college in May and have been trying to find a job and have had no luck.I keep trying though.I had an uncle pass away with lyphoma when he didn't know he had it until it was 2 late.He live about 2 weeks after he found out.My dad just went through a quad bypass 3 weeks ago.My rsd is getting worse.I can turn my scs up and only get minimal relief.I am on 4 different meds.I am having so much pain.The more I turn the scs up the more spasms I get in the shoulder and arm.I started with it in my left wrist and it traveled up my arm into my shoulder and neck,gone over to my right hand up my arm 2 my shoulder and don't know 4 sure if it is in my feet or not. Some days it hurts worse than others to walk and the swelling in my feet are something else. Somedays the swelling is in 1 foot and sometimes in both feet. I have not talk to my doc about that because I am afraid to because he told me that when i seen him for my right side he said that it usually doesn't follow a path like that. So I don't know. The only thing i know is that I hurt. Is it possible to spread like this? My thoughts are that it is rsd and that it can take any path it wants to just because it can. I am probably way off in my thinking but that is the way i feel. Is it possible that my feet are starting to get it? I hope not because I am very scared.I don't need it in my feet right now. I have way 2 much to do.How do I deal with all this?I am also suppose to see a different psychiatrist becuz the other one did nothing 4 me.I don't see the new one until August 28 and I feel like I am going stir crazy. There are days when I just sit and cry because i am so afraid that my world is caving in on me.I just don't know how to deal with the everyday pressures.I am trying but it is so hard.How do u all do it?I have so much going on that I feel like my world is spinning out of control. Please help if you can. I need so much help and can't get it. The only good thing that is going on is that my sister finally decided to read about the rsd that I have so she knows a little more about what I am going through. I am so happy that part of my family is finally interested enuff to read and care about me.Still I need help so if anyone has anything to say please do.I would greatly appreciate it. Thank u so much.

Sincerely,
screwballpookie

Hey there,
It sounds like you need a new doctor ! Did you doctor ever explain to you that like meds your body can develop a resistance or tolerance to it so it doesnt work as well. How long have you had it ? I understand how you feel in that your afraid to confide in your doctor for fear he wont believe you or help you ! I have had a few pain specialists like this. However I have always been able to confide and trust in my ortho who is the doctor that diagnosed my RSD. If you have 1 doctor that you can trust talk to him/her and try to get there help in finding someone who can help you.I wish I could do more for you. Please know that I am here if you need to talk . Maybe others will have some additional advice for you as well. Take care my friend.

Kimberly

I so agree with Kimberly on this one, Pookie!
And did you know anxiety, Deep, deep depression, deaths in the family, close friends dying(One of my best friends died last June and my RSD went waco city!!) I am still in mourning for her! Also watch what other's say about RSD. Some will scare the dickens outta ya!! We all know this beast will do, act up whenever it wants, but stress, too.. will make this even act, rear it's ugly head too!! I say do NOT be afraid of your doc. If I was in your shoees, I would fire the man and go and get me an RSD, pain management doc. One that has compassion, knowledge about this RSD I wish you the best of luck and I am so sorry to hear about the death of your uncle and of your dad going through heart surgery. I will keep you and your dad in my prayers! ~Love, Desi

Thank you to you all for your info. I have had rsd since 2002 and didn't find out that it was rsd for 3 years after I got injured and you all know as well as I that since it took so long to diagnose there was no putting in remission. I have tried everything under the sun to help with the pain and it just keeps getting worse. It scares the dickens out of me. I can't get another doctor because this has to do with a work comp case and this doc is the authorized doc so whatever he says goes. I was seeing a psych but he did not work out so they have referred me to another one and I don't see this until the end of August. That will put me in at not seeing one for 3-4 months. I feel like I am going crazy. All I want to do is cry, sleep and cry some more. I know I can't do that because I have a 12 year old to take care of which is a very big handful. I love her to death and would do anything for her but sometimes she can say some pretty hurtful things to me, treat me horribly and get herself into trouble. I am trying to deal with all of her stuff, clean the house so my hubby doesn't have a cow since he is the breadwinner of the house for now til I can find a job, deal with him being crabby and very little time for myself. Granted my daughter is great when I sit in my rocker recliner and fall asleep she lets me sleep. I am so thankful for that. My hubby would make sure I was awake and up and at um. On top of all that I have 2 lawsuits going again,one against my ex attorney and one against work comp again. Work comp is not paying the med bills like they agreed to in the settlement so we have to open to review and go against them again. In the mean time I am having to pay for all of my meds and not get reimbursed for them yet. My life really sucks and I am really trying to deal with it all and don't know how much more I can take. Oh well that is life I guess you take the good with the bad sometimes.
Take care you all and will talk to you real soon.

Sincerely,
Screwballpookie

Congratulations on graduating.

It seems the RSD has favorite ways to spread and affect victims. Mine started in my hand and is now in my entire shoulder area and hand. This is probably pretty typical since this was once called "shoulder-arm syndrome". But I also have it in my left foot which is where I sustained the injury which apparently caused the condition to flare. I have a spot in my groin where a doc shoved what felt like a screwdriver in to insert a catheter to look at the heart. I have a spot on the inside of my right elbow where a mri injection went bad. And I guess I have a little on my ear due to poor choice of surgical instrument. These spots seem to me much more ephemeral than the ear and they seem to be trying to go away completely. I haven't felt pain from the injection in months or the catheter in days. The ear probably won't last either and I'm taking grape seed extract hoping it will help. The ankle was very steady until recently but seems a little better now. I'm sure I'm walking a little more and having a lot less trouble at it.

This probably won't apply to everyone but perhaps yours will fade from the new sites as well.

Best of luck. I hope you get much better very soon.