Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-10-2008, 06:23 PM #1
Iffynah Iffynah is offline
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Join Date: May 2008
Location: Nebraska
Posts: 75
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Iffynah Iffynah is offline
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Join Date: May 2008
Location: Nebraska
Posts: 75
15 yr Member
Default What do you do?

What do you do when you have a new boss that doesn't really care to learn about RSD? I ask because I have been trying to explain things to my new boss but he just blows me off and says I don't know why you are talking to me about this, you should be talking to the adjuster. My RSD I believe is in my whole right arm and going into my right leg. For my leg though I mostly feel the pain in my right ankle, which in turns makes it kinda dangerous to drive, correct? There are times when I'm driving I loose feeling in my right foot. I have a doctors appt. on the 14th. I haven't seen a doctor since May, due to contacting a lawyer about the bone specialist and them advising me to go back to the first doctor. But since this is workmans comp there were steps I had to go thru to go back to that doctor. I've been in so much pain at work and home. I was also wondering how all you other RSDers cope with trying to do house work and taking care of kids? Was also wondering if you all have problems laying your affected area down? Because I've had this problem with my wrist since my injury and now because it feels like its spread to my right ankle I have problems laying it down too. Whether trying to sleep or just to relax it.

Thank you,
Tiff

Last edited by Iffynah; 07-10-2008 at 06:27 PM. Reason: Forgot something
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Old 07-11-2008, 07:47 AM #2
bassman bassman is offline
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Location: Milwaukee Wis
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bassman bassman is offline
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Default

Quote:
Originally Posted by Iffynah View Post
Was also wondering if you all have problems laying your affected area down? Because I've had this problem with my wrist since my injury and now because it feels like its spread to my right ankle I have problems laying it down too. Whether trying to sleep or just to relax it.

Thank you,
Tiff
Tiff,

Fortunately, the folks at my work have tried to understand. I don't have a WC case, and I have a "desk job" which makes my situation better than many. (Thank goodness.)

Keep your eyes open for news articles and other short, written explanations. Sometimes people like to read things on their own terms, instead of listening to an explanation. Also, many times a news story is believed more than a personal tale. I don't have any examples, but I am sure others will come up with links to good stories.

A couple of I sent a news story to a group of musicians I was with. They have known me for years, but never fully comprehended the RSD. After reading this article, several said to me: "WOW! Is that what you are going through?"

I know what you mean about laying down. I have the same problem. You would think that relaxing would make you feel better, but sometimes the reverse happens. I got a prescription for Ambien, a sleep aid that I use only when necessary. I don't use it unless I really can't sleep, but it does seem to do the job.

Mike
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