Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-14-2008, 12:42 PM #1
fire fire is offline
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Originally Posted by Desi View Post
Hi Fire,
Lisa is so right! There really is no test do diagnose RSD. It's the symptoms us RSD'ers have. I know when I had my carpal tunnal surgery and there was still pain after a week or more, slow healing, my hand was turning red, purple, shiney appearence. chronic on going pain so bad, that it puts me to this day, still in a deep ugly depression.
The Dr. who did my surgery diagnoised it, sent me to a pain clinic. I was in such denial, that I went to four pain dr.'s a hand, wrist specialist that woke me up to this awful beast. ~Love, Desi
I was also sent to Pain Doctor and nerologist who said in report RSD/CRPS 1 and 2. So this thursday i go to anouther specialist who is the only one in Syracuse who does the blocks. I am nervous because up till this year i was bascial told it was in my head. So sick of doctors but need some relief. Thank you for your advice. Darlene
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Old 07-19-2008, 05:49 AM #2
CZZ74 CZZ74 is offline
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Default Blocks are a great idea

Fire- the blocks could really help you- I dont know how long you have had rsd- but its agood place to start. I had one block as dx. Then followed with 21 more. SLB. but I was dx too late for it to help. I tried though. Good luck to you. Oh the other test I had were thermograph, three phase bone mri, vibartion test, temperature tests- hot and cold- I cant remember the name of them.x rays I think that is it- but the real way is a doctor who is familar and knows RSd. Good luck to you, CZ


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Originally Posted by fire View Post
I was also sent to Pain Doctor and nerologist who said in report RSD/CRPS 1 and 2. So this thursday i go to anouther specialist who is the only one in Syracuse who does the blocks. I am nervous because up till this year i was bascial told it was in my head. So sick of doctors but need some relief. Thank you for your advice. Darlene
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Old 07-20-2008, 04:51 AM #3
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Hi. Unfortunately from what I have learnt there is no test to diagnose or rule out RSD. My doctor diagnosed me with RSD based upon the symptoms - I have the burning pain, hypersenstivity, spasms, colour changes, temperature and hair and nail changes, dystonia etc. I also had an MRI scan, X-Rays and Blood Tests.
Love and best wishes
Alison
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Old 07-21-2008, 07:48 PM #4
Imahotep Imahotep is offline
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To some extent the diagnosis of RSD is really a process of elimination. They test you for everything it might be and if they're all negative then it's RSD. It's not this simple and some people have more overt symptoms than others. They gave me a thermographic exam which suggested RSD and then a stellate ganglion nerve block which confirmed it. When the ganglion is anesthetized the hand will return to normal. Mine warmed up and the pain and symptoms vanished.
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