Thank you all so much! I didn't do this for me, but for us. To have so many people give support in what I am trying to do really helps me stay focused on the goal. I really hope more people choose to write in as well. The more we stand together the more of a chance we have against RSD. We will see if she calls tomorrow. I have been on pins and needles this whole week. I should have asked you all before, but I didn't think of it till my husband brought it up. I am going to call her tomorrow if I don't hear from her by noon. I will let you all know as soon as I know.

I am new to RSD but I sent him a message as well. I would like to share that message with you all.



I'm apart of an online support group for RSD. Read a post that someone emailed you about RSD. This is a real disease, very painful. I'm new to RSD have only been diagnosed with RSD since April 08. My RSD was caused by an injury at my job. Since the problems I've had with a doctor I was seeing for my injury, and stress from everyday life, I believe my RSD has spread to my right ankle as well. My right ankle has the exact same symptoms/ problems I've had in my right wrist since a week after my injury. RSD is not that well known and it needs to be. I am still working, but was dropped down to 10 hours a week. Its a big scare to drive to work since I have to drive 45 mins one way to get there. But when I'm at work, people treat me as if I'm faking my injury, and just don't understand this disease. Some people are nice to my face then when I'm not there they start to talk crap about me. I tell them every time I work if I could I would switch with them for one day, just so I could be normal again and so they could feel what I and a whole lot of other people go thru each and everyday. Doctors also need to educate themselves on this disease. Because the doctor that diagnosed me did very little treatment for me, and expected after 2 weeks of treatment that my RSD would be gone. RSD doesn't go away, even if I could get it to go into remission its still there. RSD spreads and when this ugly monster has a hold of you it doesn't let go and will go to where ever it chooses to go. I know that there are people who have dealt with RSD a long time, I'm just hoping I have enuf strength like them to make it thru. I have to have the strength I have 2 beautiful childern that are counting on me. The message of RSD needs to get out. Please don't let more people be ignorant about this ugly monster.

I also sent an email....

Debbie

GJ Mom.. have ya heard anything from Dr. Phill show yet?? u got me interested!!
) Amber

I have not heard back yet. I called late yesterday, but she has not called me back yet. We will see. I worrry that they are going to forget about RSD.

I wrote to Dr. Phil too. I've never done anything like that before, but agree that the word needs to get out. I was diagnosed in a relatively short period of time (9 months), but I struggle nonetheless, and it was not soon enough to successfully intervene. Most of the meds have not worked on me, and many are too strong or have side effects I can't tolerate, especially since I'm still working (well, I call it that, but I used 24 hours of benefits my last pay period!). I hope many of us get on the show and the word gets out, especially to doctors and researchers.

Okay I just got a call from the lady. I have to say I had given up on it going further, but it look like if I can get insurance (I find out tomorrow if I get some), then we are moving forward! I was right before when I thought it might be the sub show of Dr.Phil Ask the Doctors, but they took the letter I wrote to Dr.Phil. YAY!!!! I AM SO EXCITED!!!!

Hello all, I sent a letter to dr. phil about my rsd and got an email from his producer. He wants me to write my story again with more info, five questions I would ask the dr.'s, how I would like Dr. Phil to help and pictures of me and my family. Does anyone have any questions they would like asked. I know there are so many.

Thanks, wish me luck,

Eileen

YAY!!!!!!! I AM SO EXCITED FOR YOU!!!

Hi All. Yuppers I just sent my little note of the the Doc in hopes that he will take us serious. I would not be able to be on the show (Don't want America's Most Wanted To Find Me) JUST KIDDING. Seriously I'm just not mobile anymore. But if it is any consellation, If one person attended they would have all of us there with them.

Best To All and Chin Up! Mark