Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-24-2008, 11:01 AM #11
Denise R Denise R is offline
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Originally Posted by allentgamer View Post
Hi Denise!

Glad to see you here! I love to visit vegas too LOL. I dont get around there like I used to but they make it pretty easy in a power chair. Even helping you get one while your visiting.

Sorry to hear about your pain. The darn stuff is like the energizer bunny with me, it just keeps going and going. There might be a group for fibro there, check online to see if you can google one up.
Hi Allen,
You are so right about books.We tried to teach all of our kids to love books our oldest always loved them more than the other 3 kids.Now She is a school Librarian in CA!
We have always read alot around the house.My hubby reads about 1-2 novels a week he likes science fiction.I like collecting very old books and mags.
I Just bought several 1920 mags on ebay my way to relax spend our money.LOL
Have a pain free day and enjoy a good book.
Today I am reading a mag about Yoga.I will join a fibro group or Yoga class after my mom comes for a visit in Oct.
Denise
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Old 09-24-2008, 11:36 AM #12
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Default Love the Buffets!!!

Denise,
I love the buffets! I will be coming out soon...Oct or Nov. We have property there. I will put your number in my cell and call you before I come out. I would love to meet you. I take Baclofin for the spasms. I too have diagnosed with fibro as well. I'll drop you am email and give you more detail or a ring on the weekend. Take care. Enjoy as much of each day as you can. As Allen said, this stuff goes on like the energizer bunny or was it battery??
Look forward to talking to you.
All the best
Diana
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Old 09-27-2008, 11:12 AM #13
Denise R Denise R is offline
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Cool Yeah a new friend!

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Denise,
I love the buffets! I will be coming out soon...Oct or Nov. We have property there. I will put your number in my cell and call you before I come out. I would love to meet you. I take Baclofin for the spasms. I too have diagnosed with fibro as well. I'll drop you am email and give you more detail or a ring on the weekend. Take care. Enjoy as much of each day as you can. As Allen said, this stuff goes on like the energizer bunny or was it battery??
Look forward to talking to you.
All the best
Diana
HI Diana,
We will be gone to CA to visit our oldest daughter the weekend of the 11th & 12th of Oct. other than that my calender is open and ready for a new friend! I can't wait to meet you.
Where do you like to go when you are here ?What do you like to do?
Looking forward to meeting you.
Denise
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Old 09-27-2008, 01:39 PM #14
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Denise, Sorry it has taken me so long to write back. Mod edit required per NT Guidelines Now to your other questions. I got the fibro diagnosis first & honestly I thought it was wrong. I didn't belive it at all & it made no sense for the pain in my arm. When I finally got the RSD diagnosis with a fibro diagnosis then it made sense. It wasn't just one thing I was dealing with but the two the sysmptoms put together that made sense to me. The pains were completely different. Adn the fbro mostly gets my the rest of my body I don't notice it in my RSD areas becaue they are too bad with RSD pain. I also have IBS & ulcers. But for pain I take topomax & dilaudid & am on a fentanyl patch. My pain meds are not working real well right now & I am going to see my gp about it because I didnt like the options my pm doc gave. Including changing to one med where I am guaranteed to be in pain & sick for a minimum of a week. Sound like fun to you? Oh & it has a 50-50 chance of even working. So second opinion time it is! I am so glad you are getting out in the sunshine & looking at a yoga class or something. That is so great. Don't give up. It doesn't seem like it I know but attitude wise at least it will get better. You find ways to live with it & deal with things I promise. I swear I had horrid days & feel much better than I did a year ago. Not that I still don't have bad days I do & I want lie to you. But they are profoundly less even during my last 5 week flare-up. It is so nice to talk to you.
hugs, Denny

Last edited by Curious; 09-27-2008 at 02:52 PM. Reason: per NT guidelines re: solicitation to other forums
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Old 09-30-2008, 09:49 AM #15
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Denise, Sorry it has taken me so long to write back. Mod edit required per NT Guidelines Now to your other questions. I got the fibro diagnosis first & honestly I thought it was wrong. I didn't belive it at all & it made no sense for the pain in my arm. When I finally got the RSD diagnosis with a fibro diagnosis then it made sense. It wasn't just one thing I was dealing with but the two the sysmptoms put together that made sense to me. The pains were completely different. Adn the fbro mostly gets my the rest of my body I don't notice it in my RSD areas becaue they are too bad with RSD pain. I also have IBS & ulcers. But for pain I take topomax & dilaudid & am on a fentanyl patch. My pain meds are not working real well right now & I am going to see my gp about it because I didnt like the options my pm doc gave. Including changing to one med where I am guaranteed to be in pain & sick for a minimum of a week. Sound like fun to you? Oh & it has a 50-50 chance of even working. So second opinion time it is! I am so glad you are getting out in the sunshine & looking at a yoga class or something. That is so great. Don't give up. It doesn't seem like it I know but attitude wise at least it will get better. You find ways to live with it & deal with things I promise. I swear I had horrid days & feel much better than I did a year ago. Not that I still don't have bad days I do & I want lie to you. But they are profoundly less even during my last 5 week flare-up. It is so nice to talk to you.
hugs, Denny
Thanks for the info.I have a Dr appt. with my rummy Dr today to find out if I have osteoarthritis or rhuemetoid arthritis or just mentalitis LOL
I think the combo of the RSD Fibro & some kind of arthritis will be the DX that makes sense to me I hope my Dr will at least have a open mind that they could all be related so we can discuss it.
Have a pain free day!
Take care
Denise
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Old 09-30-2008, 10:06 AM #16
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Hi Denise

When I was a kid we lived in this real small town with nuthin to do, but there was a library right across the street from us. I was the librarians best customer LOL.

One day she pulled me to the side and told me that she had an award for me??!!! She was going to give it to me at the next school awards ceremony. For the life of me I couldnt figure out what it was for. She gave me a certificate of achievement....said I read every book in the library

I knew I read alot of books..but not that many LOL! She told everyone there that I had made her job interesting in that she was always trying to keep new books coming in so I would have something to read. I was only in the second grade!! Books are still my friends

I had a couple of bone scans about a year apart, and what they showed is that I had osteopenia. That was a few years ago, makes me wonder how im doin now. Anyways it seems the RSD was causing this, and I gather it is a common thing for RSD people.

Sure hope you get some good news for a change
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Old 10-04-2008, 03:46 AM #17
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Default Hi Denise,

So sorry to hear of all your pain. Yes all your problems, IBS, fibro sound like they are related to RSD, it is very common. Everything I have always comes back around to beiing caused by rsd. its so frustrating but there you have ti. I have the most knowledgeable doctor in teh field so I dont think there is any question, that would be dr. schwartzman. So sorry I dont have good news. Hope today will be a better day for you. Llight swimming in a warm pool is help ful. take care, cz
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