Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-07-2008, 02:22 PM #12
Bosco Bosco is offline
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Join Date: Oct 2008
Posts: 2
15 yr Member
Bosco Bosco is offline
New Member
 
Join Date: Oct 2008
Posts: 2
15 yr Member
Frown Its a horrible monster

I have a spinal cord implant and I have had mine for over a year and wouldnt know what to do now if I didnt have it. It doesnt take away all the pain but takes the edge off. It maybe takes away 60% at times. I have RSD in both of my legs and I am on many medications still but the SCS is a godsend to me. It makes a little tingle sensation that kinda goes thru your legs (for me cause thats where my RSD is) and kinda relieves the pain. I have a charger that I wear either on a belt around my waist or by wearing these little adhesive patches on it to recharge the battery. I have a remote about the size of a cell phone that has 4 programs for me to use for different things that are pre-set by Boston Scientific who are the makers of my implant. You can see a video and get more information about the one that I have if you go to ...

Good luck to you cause this is a horrible horrible monster and at times I dont know what to do ... I hate what has happened to me. I no longer can do the little things that I loved to do to make me feel like a girly girl. I know to other people its not that important but it was to me. I now am dependent on others to take me places since I no longer can drive a car. I can only walk maybe 10 feet or so on my own without the use of my walker before my legs buckle on me. I cant be the 'Nana' I always dream about being for my little Grandbabies. I cant clean my house the way I 'used' to like things done... you have to just let others help you and I want to do things my way and of course those days are gone. So many things we take for granted... so many little things l no longer have in my life cause I no longer can work and my employer failed to carry workers comp. Which means we are in a legal battle that shows no end in sight. My family have been so wonderful in dealing with what has happened. I am very lucky to have a fantastic hubby that has shown that he is indeed a true hero for me.
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