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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-17-2008, 03:03 PM
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1. How long have you had RSD?
Injury happened in Jan 06 - Actually DX with RSD in Aug 06 = So, almost 3 years! 2.What was the initial cause? 5th Metatarsal fracture of Rt. foot 3.What treatments/medications have you tried? How effective have they been? I began treatments with lumbar blocks and oral meds, I went through Spinal Cord Stimulator Trial in Dec 06. By Feb 07 RSD had spread full-body! I continue to have 2 procedures per week (cervical and lumbar non-steroidal epidurals - under anethesthesia). I get relief for a couple hours to a couple days at the most. My current meds: Cymbalta 60mg - once daily (neuropathic pain, anxiety and depression) TopAMAX 200mg - twice daily (neuropathic pain) Fentanyl Patch 100mcg/hr - e.o.day (pain relief) Roxicodone 30mg - 3Xday as needed (pain relief) Baclofen 10mg - 2 at bedtime (muscle spasms) Xanax .5mg - 1 X day (anxiety) 4.What are your symptoms? I have had every symptom in the book along my RSD road. Currently, I have: burning, itching, redness, cyanosis, atrophy, muscle spasms/jerks, anxiety, electric jolts 5. Have you tried alternative medicine? (acupuncture, holistic, biofeedback, HBOT, etc.) Meditation, Topical Oils 6.What makes it worse/better? STRESS and RSD definitely feed off one another. They love to make you weaker and weaker.  Nothing has made my RSD better. A positive attitude helps.  My epidurals keep me balanced every week. If I go a week without them, I am in too much pain to deal with my responsibilities.  7.How does RSD affect your daily and social life? Well, I am permanently disabled at 28 years old. I no longer drive. I have a beautiful baby girl that is growing up with a mommy that should be full of life and running around chasing after her!!! I am dependent on my husband for almost everything, as far as the house goes. He is "Mr. MOM". It makes me sad that its like this...I hardly leave the house, compared to being the "Party-Hardy girl" that I used to be. 8. Are you experiencing any emotional/psychological effects? If so please explain. Oh Yes! I am normally the most happy-go lucky person in the world. Now I am so depressed, in bed, sleeping, crying, and negative towards the world. Everyone and even myself notice this.  So, Sad!!!I was taking Prozac for the Guilt and Depression that I was feeling and my PM max'd it to 80mg...After a couple months, I realized there was no difference. So, He weaned me off and put me on Cymbalta. I am still not noticing much of a difference.  Plus, I started having major flare-ups everyday that started to cause major panic attacks that I have never had before. So my PM put me on Xanax, and that has really helped, but it is really addicting and I don't need that right now.  In addition to all this drama, I am an emotional roller coaster. I cry all the time. My mind drives me insane. I am always worrying. I always feel guilty about this disease. The meds make me feel like an addict. So, forth and so on.... 9.Does RSD affect your ability to work? I have been permanently disabled and on SSDI for 2 years now 10.Have you been told by others its all in your head? If so by who? When the RSD spread full-body after the SCS Trial. Two doctors told me literally "It's all in Your Head" and "There's No Way That It's Possible!" and that I would be "1 in 1,000,000"....This was Dr. David Lanzkowsky in Las Vegas, NV 11. Have you ever been denied treatment? (by hospitals, clinics, doctors, ER, etc.) I was being seen for 1 year by Dr. David Lanzkowsky of Centennial Spine and Pain in Las Vegas, NV. He placed a Spinal Cord Stimulator Trial that made my RSD spread full-body. Then, he had the audacity to tell me that there was no way that the SCS could cause spread. This is widely known that is can. I continued to see him because he was still the best Pain Doc out in Vegas as far as I was concerned. I needed meds monthly. I needed continuous cervical and lumbar blocks and he said "I was the worst Case of RSD that he had ever seen and he didn't know how to help me anymore"...Just let me go...We had to move back to Southern CA, to my original PM that DX me in Orange County, CA. It was the best thing I ever did, But Yes, I was denied because the doctor didn't know what to do with me..lol  12.What tests were run to find diagnosis? 3-phase bone scan TENS - unit Name:Heather Martin Age:28 Location: Orange County, CA Huggs, Heather 
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. "We Will Conquer This Demon They Refer to As, RSD!" . . |
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Full-Body Systemic RSD (Almost 3 years)
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