Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-15-2008, 08:07 AM #1
vanityfaire vanityfaire is offline
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Default My Daughter's getting married today!

I am so excited for my little girl. Her new husband is so wonderful. He really adores her and I know that they are going to be so happy together. She has ADD and he knows just how to work with her. He is very patient and kind with her. He never puts her down when she is being impulsive.

The weather here is the coldest it has been in 20 years and my RSD is spiking in pain. I have had to take extra meds the past few days and since I am home for a couple of days from work I am trying to take less. Going to bed is an option for pain when I am not working. Well I am sitting here this morning and my daughter wants me to be with her all day to do her hair appointments etc. Her best friend got the flu and can't take her. I want to be there for her but I am frozen with the RSD pain. I think I can only do the actual wedding time period and be able to make it.

I went out and bought a cheap pair of shoes to wear to the wedding. I have RSD in the left leg so shoes are not so comfortable for me. I did find a second pair of shoes as well to wear everyday. They are called Cloud 9 shoes and come in wider widths with stretchy tops to them so they will work for the offending foot. I thought I would mention the brand because I am sure others have the same deal going on. The shoes were only 20.00. I got them at a store called the Avenue. They are online.

Well back to the wedding. I am up taking meds and gearing up for my day. I have to cut my husbands hair, son's hair, and my cousins if I hold up. Than pick up the flowers and take them to the wedding. I have to drive an hour to get there and it is very icy out. I am going to have hubby drive and I am going to take a few blankets to have on my leg. I am going to give this my all to get through today with no complaints and focus on my baby. RSD is so crappy.

Have any of you ever worked a plan with your pain dr. to get a shot a few times in a month when the pain is high. I was told by a friend who is a PT that some people have had a plan like that. I was so close to going to the ER room the other day for pain to get a pain shot but didn't want to hassle with the ER dr. just thinking I am there for drugs. Once they find out you are taking heavy meds already they just put you in the drug seeking catagory. I am going to meet my pain dr. next week and bring this up at my appointment.

Well thanks for sharing in my special day. I know I am going to cry tears of joy. You are all my family here even though I dont' post much I read the forum and use it to help me in my everyday life. --vanity (jo)
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Old 12-15-2008, 08:12 AM #2
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Here is the link for the shoes http://www.avenue.com/webapp/wcs/sto...Id=40000000326

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I am so excited for my little girl. Her new husband is so wonderful. He really adores her and I know that they are going to be so happy together. She has ADD and he knows just how to work with her. He is very patient and kind with her. He never puts her down when she is being impulsive.

The weather here is the coldest it has been in 20 years and my RSD is spiking in pain. I have had to take extra meds the past few days and since I am home for a couple of days from work I am trying to take less. Going to bed is an option for pain when I am not working. Well I am sitting here this morning and my daughter wants me to be with her all day to do her hair appointments etc. Her best friend got the flu and can't take her. I want to be there for her but I am frozen with the RSD pain. I think I can only do the actual wedding time period and be able to make it.

I went out and bought a cheap pair of shoes to wear to the wedding. I have RSD in the left leg so shoes are not so comfortable for me. I did find a second pair of shoes as well to wear everyday. They are called Cloud 9 shoes and come in wider widths with stretchy tops to them so they will work for the offending foot. I thought I would mention the brand because I am sure others have the same deal going on. The shoes were only 20.00. I got them at a store called the Avenue. They are online.

Well back to the wedding. I am up taking meds and gearing up for my day. I have to cut my husbands hair, son's hair, and my cousins if I hold up. Than pick up the flowers and take them to the wedding. I have to drive an hour to get there and it is very icy out. I am going to have hubby drive and I am going to take a few blankets to have on my leg. I am going to give this my all to get through today with no complaints and focus on my baby. RSD is so crappy.

Have any of you ever worked a plan with your pain dr. to get a shot a few times in a month when the pain is high. I was told by a friend who is a PT that some people have had a plan like that. I was so close to going to the ER room the other day for pain to get a pain shot but didn't want to hassle with the ER dr. just thinking I am there for drugs. Once they find out you are taking heavy meds already they just put you in the drug seeking catagory. I am going to meet my pain dr. next week and bring this up at my appointment.

Well thanks for sharing in my special day. I know I am going to cry tears of joy. You are all my family here even though I dont' post much I read the forum and use it to help me in my everyday life. --vanity (jo)
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Old 12-15-2008, 09:39 AM #3
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congrats to your daughter jo. my oldest daughter got married on the 6th.
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Old 12-15-2008, 10:24 AM #4
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I have tears in my eyes Jo, I can just tell by your post how happy you are for your daughter and how proud you are of her!! I am SO glad that she has found a nice, loving man who will take great care of her and who understands her ADD and what to do and what not to do - that is great!!

I hope you have a great day today and that you wont be in too much pain afterwards . I love the shoes that you have ordered - they are so pretty and fashionable but look comfortable!

Please send my best wishes to your daughter today and tell her Congratulations from me!!



Take care of yourself and please come back and tell us how the wedding went - I have missed not seeing you on the forum!!
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Old 12-15-2008, 01:08 PM #5
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Congrats to you too. Its such a wonderful thing to see your children happy and independent. I am off to pick up the flowers.

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congrats to your daughter jo. my oldest daughter got married on the 6th.
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Old 12-15-2008, 01:09 PM #6
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thanks so much Ali. I enjoy reading your posts and miss you.
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Old 12-15-2008, 01:34 PM #7
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Congrats on your daughters special day. My youngest got married a few weeks ago. I know what you mean about being with them the whole day. People at the wedding didn't think anything was wrong with me that day. (yeah for meds). I spent the next few days in bed, but I wanted the day to be about her not me. there were times I had to go into the ladies room at the reception and try not to cry or throw up from the pain. then I'd come out, smile and dance and laugh. I will never do that again. Luckly, all my kids are now married off. I also had my best friend here, and she did all the running around and driving and taking care of the wedding party and me. I couldn't have done it with out her. Hubby tried, but there is only so much father of the bride can do on that day. can't be in there helping the girls get dressed, that's for sure.lol

Enjoy it, and know that you can climb into bed this evening when it's over, and not move again for another day or so.

Hugs
Mary
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Old 12-16-2008, 10:45 AM #8
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Jo,

Congratulations! My daughter is getting married on December 27. I am really happy and excited and at the same time scared. I really really want to be in good spirits and with her the whole day. She is so special to me!

I don't know if I will hold it together. I have already started crying. She is my only child and a real 'daddy's girl.'

I guess my motivation to fight off the pain, weakness and fatigue (if that really is possible) is that I want this to be a day that is her fairy tale, not about me at all. I need to be able to walk her down the aisle and maybe even have that special dance. If that can be done without being over-drugged -- Yea!

Jo, Mary, and Curious, I am real happy for all of you. It seems that December is more of a 'wedding month' than I would have expected.

Mike
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Old 12-16-2008, 10:53 AM #9
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I just wanted to post that it was such a wonderful experience. The love my daughter has for her new husband and visa versa is so evident in their looks to each other. The ceremony was beautiful and they were so excited for their day. I lasted the whole time I was there. I only had one moment of leg cramping and it went away. I had to do a flight of stairs twice. Yuck the worse part. But it was about her and her day. She was so happy.

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Jo,

Congratulations! My daughter is getting married on December 27. I am really happy and excited and at the same time scared. I really really want to be in good spirits and with her the whole day. She is so special to me!

I don't know if I will hold it together. I have already started crying. She is my only child and a real 'daddy's girl.'

I guess my motivation to fight off the pain, weakness and fatigue (if that really is possible) is that I want this to be a day that is her fairy tale, not about me at all. I need to be able to walk her down the aisle and maybe even have that special dance. If that can be done without being over-drugged -- Yea!

Jo, Mary, and Curious, I am real happy for all of you. It seems that December is more of a 'wedding month' than I would have expected.

Mike
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My Daughter's getting married today!-breanna-wedding-party-jpg  
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Old 12-16-2008, 10:56 AM #10
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here is another one of mom and dad with new son in law
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My Daughter's getting married today!-paul-dan-jo-jpg  
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