Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-06-2008, 07:07 PM #1
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Join Date: Nov 2008
Location: southwestern PA
Posts: 101
15 yr Member
Default Have I been in denial about RSD?

Hey all...have something to run by the experienced (or at least more experienced than me.)
I was diagnosed with RSD a month and a half ago. I have had four lumbar sympathetic blocks, but for some reason, they do not want to do any more. I am on Lyrica, MS Contin, Lexapro, Wellbutrin; failed Cymbalta and Neurontin due to side effects. Overall, my symptoms are less compared with onset, but still fairly limiting.
Please, please, please don't take the following wrong; I couldn't be more appreciative of the help and the Lyrica makes me foggy enough to offend without being really aware.

Am I seriously going to have this forever? Really? I'm not going to get better? I'm not going back to work? For some reason, I thought that for me this was going to be a month or two and I would be all better. Suddenly, I feel panic-y and hysterical, like my life that I've worked for for 38 years is down the toilet and I will be a burden on my family forever. I didn't think this would happen to me. I know this sounds, maybe, I don't know, arrogant...but I couldn't imagine this was going to be permanent for me.

Have I been in denial all of this time? How long should I have it until I should accept that it is permanent and that there is not a real chance of going back to my old life? I need to know when it's time to accept it as permanent thing or when it's time to keep fighting and looking for the "Holy Grail" treatment for me.

This may be a minor freakout, but the anxiety is killing me and I'm starting to have thoughts that I should just check in to an inpatient rehab and lay there til the bedsores kill me. I fear I am losing it.

Any thought as to how long I should wait before booking my bed?
Lori Lee
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