If you would like to put a link to this thread in the Useful Websites and Links Sitcky, that would be fine, but not as a sticky of it's own.

Only Mods can make stickies BTW.

I think we all read things from our own perspective, it's not a good or bad thing. Just certain things might catch one's eye more.

As this was a college paper, she probably had a limit of words and not able to be specific , more of an overview.

I thought your paper was fine.

I am always amazed at how some of our RSD people can go to school and work and try to live as normal a life as possible when I also know many of us can't.

You covered everything really good. It gives people the options of what they can do all in one writing.

You know when it comes to the meds, I do agree with you. I do get out a lot and I know several people that are so addicted to their meds that they can't function and also go Dr. shopping. I saw my best friend at 63 get addicted to Oxycontin and was Dr. shopping. I have another friend that lives 4 doors up from me that is so addicted to her drugs that she can't function. I know of 3 more that are addicted. It doesn't take a genius to see that when they come begging you for meds too.

What really throws me about this is that they all go to the same Dr. and he gives them anything they want. He actually had his license pulled for awhile but back to the same antics. These are the Drs. and patients that make life hard for the legitimate ones like us to get the help we need.

As far as the SCS there could be different size batteries out there. I don't know how many companies make them. There are variations of everything anymore.

You did good.

Ada

wow that is all i can say ... GREAT JOB !!!!! my daughter has also written about rsd in her cna class and meds,scs,pain pump were included in it. again let me say you did a awsome job. i will also add every dr i have gone to for pain managment i had to sign a contract.

i had an SCS implanted and had it removed. I actually have the unit that was taken out of my body it a sterile bag.

by me putting in that we can be perceived as drug seekers, and addicts, i was aiming to try to show the reader what we go through. it was meant as to teach and show outsiders what we go through and how we're viewed. i was in no way saying that we are them, but that we may be seen that way.

to try to give the reader a better understanding that not only do we have this ridiculous pain, but that it causes us to lose use of our limbs, that we have to change our lives, the emotional ups and downs we go through, the trial and errors we go through trying to find something that helps us manage our pain so that we can just stay sane, how outsiders think we're making it up and because we're having to take so many meds (not just narcotics cause if others see us taking pills they don't know what they are) that we pill poppers.

it is a college paper, and i am in no means a doctor or trying to be one in trying to explain what rsd is. it is coming from my perspective and trying to explain all aspects in words that everyone can understand.

Andrea, This is truly one of the most well written documents I have ever
read on Rsd. Great job! And I too shall pass it on! Kudos to you my dear!

Jezz

Andrea,
I think you did a most outstanding job with this paper! A+ is the Least you should / could have gotten!
It's easy to see the amount of time, and sweat you put into it.


I want to say just a word about Denny's comment.

I'm going through a hellacious divorce, it's been more than a decade. I had a TBI, on top of the full body rsd, and I am on medications. The TBI is besides the normal tearing/swelling, I also have a subdural hematoma at the top of my brain stem. I was in a "walking coma" for a few years. During this time, my wife emptied my bank accounts, and stole most every asset that myself and my two business's owned. Even emptying my daughter's bank account. My two children and myself were thrown out of MY own home three times. (Her name is not on my house, nor, or they her children). Now, she is trying to take that house, that she never paid a penny into.

While reading your paper, I thought wow, here's a way I can make the court realize quickly and efficiently part of what I'm going through. (I have a document on the TBI, but, it's almost 100 pages) Judges like things concise. All was great until I came to one line:

"Drugs in these classes are usually favorable among people because of the high they get."

I felt a charge go through my body! (There's just something about that sentence).

I feel that sentence is somehow worded wrong. It can be taken out of context too easily, on a touchy subject.
(In all fairness to Denny, You did ask for comments.)

You see, my wife, being the charming person that she is, (did I mention she woke me every morning for six months by spitting in my face, and telling me to get up and commit suicide, and take my daughter with me?) Yea, because I'm worthless.
This sweet heart of a lady is telling the court that I was "hooked on narcotics" and therefore abusive.
Her lawyer, in court questioned me if I was still taking methadone.
Of course I am.
(My lawyer didn't show up). Nothing about my RSD, my pain, or any truth came through.
These kind of people not only don't understand, they cannot empathize, and WILL USE IT AGAINST US, if they need to! Remember, there are LOTS of people (Disabled with RSD) who will go through court trials. (I have quite a experience on that one too.)

This attitude is so damaging and pervasive, in the community, that it has to be shown to be wrong!
I have NEVER gotten any kind of buzz from methadone. (That's why it's used to nurse addicts off of Heroin. No BUZZ!) Or, any medication that I take for that matter!

I think perhaps Denny was talking about this sort of situation coming up. I'm not sure.

We are weakened people living in an ocean of sharks. Weakness is condemned. The weak must die. Only the strong survive. You've heard them all.
People are not "naturally educated" about medications, because they are drugs. And therefore, their ignorance and arrogance can take over. Watch TV any night of the week, and you'll likely see an "anti-drug" ad.

I do think that your paper was absolutely excellent, but for that one sentence.
(I think I would simply omit it),, but then it wouldn't be YOUR paper!

Heck, I couldn't write better!
I'm really glad you got the grade you did, you certainly deserve it!
And, I do NOT mean to take anything away from you, or it!
Just a different perspective.

Pete
ASB

Hey Pete,

What is a TBI? Hugs, Roz

I think it's "traumatic brain injury"