Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-09-2009, 03:20 PM #18
MominPainRSD MominPainRSD is offline
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MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
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Quote:
Originally Posted by daniella View Post
I can hear but have a lot of ear pain on the one side. I thought it was from the severe eye pain I have but now not sure. I have been to ear specialist,gp,pain docs etc. It feels like a lot of pressure,burning sometimes,and like someone stuck something in my ear. I don't have a lot of advice other then I too need to go back for another mri of my brain.
Actually, my hearing has improved since I stopped taking a muscle relaxant during the day (I suspect now it was a combination of blood pressure and a sinus infection getting started). I still get that fluid feeling and sound in there (I just started antibiotics for the infection last night).

The eye pain could be caused from the TMJD as well. Also, the trigeminal nerve runs from your ear to your eye, nose, and mouth (approximately) so if anything is pressing on that along that nerve, the pain can be felt on that whole side of your face.

I had a detailed Tomogram, which is basically a bunch of specialized and detailed xrays.......like, 50 of them. It took over an hour. All it did was show degeneration in the bone but that I am not a surgical candidate. There is nothing else they can do for me.

I think we should consider a strong connection in the TMJD and the RSD. The pain is so similar in both and I have proven bone degeneration. I cannot afford to follow up with anyone at this point to confirm, but will as soon as I can. I cannot live with this pain for the rest of my life.

I could be wrong, but I think MRI's are useful in looking closely at soft tissue and contrast, while xrays (or the equivalent) are best in viewing bony changes.

Which came first for you?? Your RSD or your TMJD??? How long have you had each??? I am very interested in the possible connection.

I am SO sorry for your pain.....I totally understand it. It makes eating, talking, even flossing your teeth painful. I pay dearly the next day if I eat anything crunchy. Please take care and I really appreciate your input!!!
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