Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-07-2009, 09:18 PM #1
kelly6449ed
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Confused anyone have brakeway weakness? with there RSD?

Hello All

I just read something in my report ,,,, talking about breakaway,
in one of my test,,, I understand that is a test if to find out if someone is faking, as he said in this IME, thing, ya I know I said I was not going to look at it again, but I did,
I know if someone is pulling on my arms I am not going to have the strategy to keep from giving out, and there is pain,
so it said I had breakaway, all over his report,
can someone please explain this to me,? any info about this and RSD?


thank you
Peace
Kelly
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Old 02-07-2009, 10:49 PM #2
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Quote:
Originally Posted by kelly6449ed View Post
Hello All

I just read something in my report ,,,, talking about breakaway,
in one of my test,,, I understand that is a test if to find out if someone is faking, as he said in this IME, thing, ya I know I said I was not going to look at it again, but I did,
I know if someone is pulling on my arms I am not going to have the strategy to keep from giving out, and there is pain,
so it said I had breakaway, all over his report,
can someone please explain this to me,? any info about this and RSD?


thank you
Peace
Kelly
Kelly, this may or may not answer your question. I am sure there are other people that may have more specific understanding of the term. This is just what I found out. I think it sounds like an exam finding that you were resisting his pulling or pushing on a limb but would stop offering resistance when it started hurting. Can you remember if that was when it happened in the exam?? When he would say, for instance, "Push up on my hand (while he was pushing down on your leg offering counter resistance) and then you may have stopped out of pain more than weakness. Does that make any sense?? I think it sounds like a diagnostic tool to determine true weakness vs. pain upon exertion. Someone tell me if I'm wrong!!! I'm just guessing. I posted the link at the bottom. It is a very complicated article (actually a textbook chapter), but the section on pain that I cited is 1/4 of the way down:

Pain. Pain can be a particularly difficult symptom to assess in the weak patient. First of all, a highly specific pain pattern may indicate nerve root damage or damage to a particular peripheral nerve. On the other hand, many patients with pain report “weakness” that has nothing to do with nervous system damage. There are both voluntary mechanisms and unconscious mechanisms that limit the use of a painful body part. This can be perceived by the patient as weakness, despite a completely normal and intact neural and neuromuscular mechanism. On examination of such patients, there appears to be intermittent effort and “break-away” type weakness and the patient may be perceived to be “faking it.” This assessment should be made with great caution, especially in the case of painful syndromes.>

http://www.dartmouth.edu/~dons/part_2/chapter_12.html

I will be curious to see what others say!!! Don't read that report any more tonight!!! You need your rest and won't be able to if you're so worked up from despising your doctor!!! Just deal with what you must.....TODAY!!!

Hugs, my friend!!
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Old 02-08-2009, 01:05 AM #3
kelly6449ed
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hay thank you

yes it was during him pushing on my hands and arms, both that are painful for me, and I have a lot of weakness, that is why he called it breakaway with this
he did not do this to my legs, my arms do not lift up all the way,
they have been like this for a long time, like frozen shoulder, they just do not go up pass my belly button, no one as ever look in to that, no teat in to why
but I can not bring them all the way up, or a rotter cuff is torn, there is a lot of pain from even when someone try's and pushing on them OUCH
the only way I can bring them up, is to bend them in to me and then I can bring them up to only to my face, it makes washing my hair hard,
but they are very weak, and if someone pulls or push on them I am not going to be able to hold them up long, with out pain or weakness, they just give out,
like my legs when I am able to stand or walk a little,
they just give out, like arms,

peace
Kelly
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Old 02-08-2009, 01:23 AM #4
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I found the list of my injury's from when I was in the crash,
the Cleveland Clinic found most of them,
this everything that was found wrong with all the test that I had done,
and all of the Dr's
witch I never had before I got hit,
some kept getting worse, like my herniated disks in my neck
I had 3 MRI and every time I had a new one they could conpear them
and the report would come back, it appears to be getting worse, then the last IMR
also I had a test and an MRI just before I got hurt that was clear
its in the IME Dr's report also,
then my 1st MRI after I got hurt, was just in my neck,
my Lumber was good and so was my THORACIC SPINE
it was a year and half later I had a new MRI and
that is where they found more wrong,
list goes on,


C4-5 HERNIATED NUCLEUS PULPOSIS AT JUNCTION OF RIGHT ANTEROLATERAL RECESS AND RIGHT NEURAL FORAMEN;
C4-5 NEURAL FORAMINAL NARROWING ON RIGHT SIDE AFFECTING VENTRAL C5 NERVE ROOT;
C5-6 RIGHT SIDED DISC HERNIATION EFFACING THE VENTRAL ASPECT OF THE THECAL SAC ON RIGHT SIDE DISPLACING THE RIGHT SIDE OF THE SPINAL CORD POSTERIORLY;
C5-6 NEURAL FORAMINAL NARROWING ON THE RIGHT;
C5-6 SPINAL STENOSIS;
C6-7 DISC HERNIATION RIGHT SIDED EXTENDING FROM POSTERIOR CENTRAL ASPECT OF DISC INTO RIGHT NEUROAL FORAMEN;
C6-7 EFFACEMENT OF RIGHT SIDE OF THECAL SAC EFFECTING VENTRAL NERVE ROOT RIGHT C7;
AGGRAVATION OF DEGENERATIVE CHANGES MANIFESTED BY DESICCATION AND NARROWING OF DIFFUSE NATURE THROUGHOUT CERVICAL SPINE;
LINEAR HIGH SIGNAL ON T2;
AGGRAVATION OF DEGENERATIVE CHANGES THORACIC SPINE;
AGGRAVATION OF DEGENERATIVE CHANGES LUMBAR SPINE;
LUMBOSACRAL TRANSITIONAL SEGMENT;
ENDPLATE IRREGULARITIES LUMBAR SPINE;
RIGHT MEDIAN NERVE NEUROPATHY RIGHT WRIST;
CARPAL TUNNEL SYNDROME;
NECK PAIN;
PINCH NERVE C4/5 RIGHT
LEFT AND RIGHT SHOULDER PAIN;
BACK PAIN;
HEADACHES
JAW PAIN/TMJ
FRACTURE OF TOOTH #14;
PERRICORONITIS OF TOOTH #16;
NUMBNESS AND TINGLING ACROSS BACK;
DIFFICULTY BENDING;
DIFFICULTY LOOKING AND SIDE TO SIDE;
DIFFICULTY STANDING, DRESSING, DOING HOUSEHOLD CHORES, LIFTING, SLEEPING;
DECREASED CERVICAL LORDOSIS;
DECREASED LUMBAR LORDOSIS;
INCREASED THORACIC KYPHOSIS;
MARKED ATROPHY OF UPPER TRAP, LEVATOR AND SUPRASPINATUS;
TENDER PARASPINALS CERVICAL AND THORACIC SPINE;
NUMBNESS AND TINGLING DOWN BACK AND INTO HEAD;
DECREASED SENSATION RIGHT SIDE OF CERVICAL SPINE, UPPER BACK AND UPPER EXTREMITIES;
DECREASED PECTORAL FLEXIBILITY;
UNABLE TO FEEL UPPER BACK DUE TO LOSS OF SENSATION;
SENSATION LOSS INSIDE OF MOUTH;
LIP NUMBNESS;
HEAD TINGLING;
RESTRICTED RANGE OF MOTION CERVICAL SPINE;
STRAIGHTENING OF THE NORMAL CERVICAL LORDOSIS CONSISTENT WITH PARASPINAL SPASM;
THORACOLUMBAR SCOLOSIS;
NUMBNESS AND WEAKNESS BOTH ARMS AND SHOULDERS;
CERVICAL PAIN RADIATING TO BOTH SHOULDERS AND DOWN RIGHT ARM INTO HER THUMB AND DOWN LEFT ARM TO ELBOW;
DIFFUSE NUMBNESS ENTIRE HEAD AND FACE;
CHRONIC PAIN SYMDROME;
BRACHIAL NEURITIS;
RADICULITIS;
DISPLACEMENT OF CERVICAL INTERVERTEBRAL DISC;
THORACIC DISC DEGENENERATION;
THORACIC SPONDYLOSIS;
spinal stenosis LUMBAR
LUMBOSACRAL NEURITIS;
PAIN IN LIMB;
ABNORMALITY OF GAIT;
VISUAL DISTURBANCES;
IDIOPATH AUTONOMIC NEUROPATHY;
CERVICALGIA;
PAIN IN THORACIC SPINE;
myafacle pain (spelling is not right sorry)

anyone understand any of this?
its all a big mouthful for me,

peace

Last edited by kelly6449ed; 02-08-2009 at 01:26 AM. Reason: miss something
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Old 02-08-2009, 01:58 AM #5
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I just posted the list of injury's on a new thread, sorry
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Old 02-08-2009, 09:44 AM #6
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I'm not sure what breakaway is as no-one has explained it to me but my legs give out a lot and I fall to the ground!! I actually spent over a year wheelchair bound because I couldn't get my legs to hold me upright for more than 2 seconds or so - I am a little better now but still have issues and my legs give out a lot!

I have noticed recently that my ankle on my RSD leg seems to "twitch" and then the next thing I know, I will be on the ground and in extreme agony! I never really know when this is going to happen which is really stressful and it doesn't give me enough time to sit down!! I really need to mention it to my Physical Therapists when I see them next and see what they can do!!

Do you have any PT session??? I have been on 2 Intense Physical Therapy Programs now and am due to go on one again in April and the PT's there would give me "weight exercises" to do!! I had to wear 2lb weights on each of my legs and move them up and down, side to side etc and it would stabilise my joints. It REALLY hurt but it helped and I think if it wasn't for that, I would probably still be in a wheelchair now!! If you are interested in the exercises, please let me know and I shall give them to you as I still have them and do them every other day ... you could probably do these exercises at home as long as you got some ankle and wrist weights!!

I hope you feel better soon and i'm thinking about you!
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Old 02-08-2009, 10:45 AM #7
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Ali

I have to say this again to you, Out of all the Questions you answer
You tried to take on this one, that just say's a lot for who you are, you are 100% beyond your years so again I say to you
Its like you see the big house and you just jump on, no matter what,
I am sorry to hear that you are struggling, so much, and I hope in your life time that, RSD will have a brake though, That is the wish I have, for all the kids, that get this, that in there life they has to be something someone will come up with to help, or at least stop it from spending, and find it soon! You work so hard to help outer and no so much more then a lot of us, me for one!
no PT at this time, My last PT lady look at my spine one day, and she said, Kelly your back,(spine) is flat! no curve in it at all, I wanted to know what she was talking about, she said, you are bent over, but its at your hips, and your back dose not have no curve in it at all, she had me lay back down
and ask me why no one fix me? after that, she really took it easy on me, and then they stop, working with me, not soon after that, they said there is not much they can do for me,
I had a nurse see this report one day, and she sat down and said, OMG I would not want your spine! I just ask why? I did not know all of this also, that is when I ask for a copy of it, that was over a year ago,
I do not want to know what it looks like now,
I was told it was a chain reaction, with my spine, and something to do with RSD of the spine, also, that RSD can course some of that to happen,
and everyone wonders why I was begging for help, that HURTS!
and it never stop,

besides RSD, my spine was shot, its all from the car crash,
now i just wake up this morning and my left foot is dropping, it is stiff and I can not bring it up but just a little bit, I hope it is just stiff from being in bed,
not sure what happens when both feet drop,

so again Ali, you are one smart brave young lady, no dough
You are going to do good in life no matter what you do,
and I am sure your family is very prode of you, ugg I can not spell it, I am so sorry,
big soft to you Ali,
Kelly

Last edited by kelly6449ed; 02-08-2009 at 10:53 AM. Reason: miss spelling
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Old 02-08-2009, 12:12 PM #8
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Kelly,
I will reply more later, but one thing I wanted to mention is that 10 years ago, the Ortho said that my back was "fused" from spasm from my mid back to my bottom. I could not bend or twist or move at all......but it was from spasm. It took a LONG time working with it and doing PT and exercises at home now but I now have a "normal" spine with movement (I even had a baby 5 years ago!!).

You are so disabled, you may be eligible for a PT to come to your house and work with you??? Do you have SSI or SSD??? I am way out of my realm of understanding of how all of this works, I just want to get you HELP. My friend is a hospice nurse in Georgia and she visits homebound people in their homes. If there is any way you could get PT, I think that could help you in conjunction with good muscle relaxants and proper pain control. I honestly believe there is hope to get your mobility back and ANYTHING would be an improvement and give you a better quality of life.

I'll PM you in a while!! Thinking of you and wishing you a good day today!! Hugs!!

Last edited by MominPainRSD; 02-08-2009 at 12:13 PM. Reason: error in spasm location
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Old 02-08-2009, 12:51 PM #9
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thank you mominpain

I did have PT in my home that is when they said, there was not much they could do for me, (I am so sick of hearing that)
yes I am on SSD and SSI, but again its auto medicare will not cover me,
I just got pass medicare with some of it, one of my Dr's going way beyond helping me, and has got somethings pass medicare, but no all,
we/ she keeps trying to do somethings for me in hopes that they will cover me
but there is not much anyone can do for that part, even one of my own Dr's PM
Dr, keeps telling me in the 20+ years, he has been doing this, he has never seen the Ins Co, go as far as they did with me, and it is there fault no one would treat me, they kept fighting to pay anything, I had to even pay out of pocket to have my tooth pulled, they would not cover it, even thou my TMJ and my tooth broke when I was hit, and it took them 10 days to send someone to see my truck, when I called , they said with in 24 hrs
so they left me out in a diff St, with out no help, I called and ask for help they just said we are still investigating it, !!
wow and the car crash was not one bit my fault
and I never had a ticket, never miss a payment, or was I late, and I kept up full coverage, I am 44, A+ driving record,

thank you mominpain
Kelly
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Old 02-08-2009, 12:55 PM #10
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Hi Kelly,

Thank you SO much for your kind words ... I really appreciate them and am so glad that I could at least try and help you even if it was just in a small way!

I'm so sorry to hear that your back and spine is so badly damaged and I really hope you can get it sorted real soon! I have spinal issues also although they have never been diagnosed - my PT's say that I am extremely bent over and I can't sit up at all. If I try and sit up, I just go into a slouching position straight away and it really hurts me! When I was on the Intense Physical Therapy Program at Great Ormond Street Hospital, London, a girl there had really bad Scolosis and she had a LOT of the same symptoms as me!! I did mention it to my PT's and they didn't really say anything and didn't seem that interested but still to this day, I wondered if there could be an underlying problem other than the RSD and the long list of other health conditions that I have!!!!

I really hope you can find a Physical Therapist that can help you and that will go easy on you! I would definitely look into the weight exercises that I told you about and see if they work for you or not - I have the website to where you can get some weights if you would like me to send them to you!!! Over here in the UK, we can only get PT's IF we go to the hospital and it's so stressful and painful trying to get ready and then travel there and back!! I wish you could find one that could come to your home as I am sure it would help you quite a bit - even if it is just in a small way, it is so much better than nothing!!

I'm thinking about you and if you need any help, you know where I am!
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