Hey everyone... I know it has been a very very very long time since i have been around... But holly crap i am losing it.... .... I am in so much pain.. and I am assuming in the middle of flare... I just dont know what to do to make it better... I have been to the hospital and the pain doc... He increased my opana but only by a little and it doesnt seem to be helping at all... I am not sure what to do at this point but i am pulling my hair out i am hurting so badly!!!


If you guys have any ideas on what to do let me know..


Jacquelina

Jacquelina i am so sorry that your having so much trouble with your rsd. where is your rsd? have you tried blocks . i dont know the med that you are talkin about. i am also goin g thro a bad flare and like you just sick of it . i have a pump and they had to trun it thursday and i havent felt any different .
have you tried epson salt in a bath with the water as hot as you can stand it thats what it do when it gets bad// again so sorry that your in so much . have you done any blocks or anythign like ?

what treatments/meds have you tried? when my flares are at their worst i'd go take a hot bath... not only does the heat help but will relax ur muscles and help with relieving the stress from hurting so bad.

Hi Jacquelina,

I'm so sorry you are having such a difficult time. Flares are the worst aren't they. I find my flares are around when I'm extra stressed, anxious, or physically ill. Scented candles, visualization of beaches, favorite music, reading, meditating, praying, talking to my close childhood friends, I'm 60 and we moved away 10 years ago from the west coast to cacus country. I've RSD 12 years. Swimming and massages are two things that help me keep mobile, water needs to be 86 degrees. A warm soak in the tub with organic lavender etc.
'Feel Good' movies are a distraction too. My Dr. a neurologist, psychiatrist, pharmacologist
I've been seeing 5 years, is conservative on meds and we both agree an anti=anxiety med is good for me 3 times a day. It keeps my sympathetic nervous system is a more mellow state-steady. I have ptsd. You might ask your dr. how he feels about that type of drug to keep your nervous system more level? Remember flares do END, but I know they are not easy going thru. Take care and let us know how you are, Loretta

so sorry to hear that your in pain. hoping for you to fell normal again.

Hi and I am sorry you are in a flare up. I can relate. Is there a way you can call your doc and tell him that the pain med is not helping? Are there other treatments or pain meds you have been suggested you may want to look further into? As for me for my flare up I often feel I will loose my mind in pain so I try to get through the day and remind myself I have these horrible times and then it does ease up. Also reaching out for real time support and to do things for yourself you feel comforts you. When my pain gets high I am like 8 again with my blanket,special foods,etc. It is corny but it helps in a way I guess. Many thoughts

Hi Jacquelina,
I too understand. I have had RSD for 20 years in July.This is a tough time of the year. I am so sorry you are having this flare. Sometimes my flares run ten days in a row. Its a killer. I will have to "Ditto" what some of the others have said. I take the hottest bath I can stand, then crawl into bed and try to sleep, sometimes that calms things down. Many nights I take more than one bath. Also some relaxing music if you can't sleep after the bath to help you to calm down. I wish there was more I could offer and certainly hope you get control of your flare soon. Watch your diet, and try to keep your stress levels low. Let us know how you are doing. Stay in touch. We are all here for you. Hugs Di

Dear Jacquelina,

From Dr. Andrew Weil...this breathing exercise is very beneficial.

"The 4-7-8 (or Relaxing Breath) Exercise
This exercise is utterly simple, takes almost no time, requires no equipment and can be done anywhere. Although you can do the exercise in any position, sit with your back straight while learning the exercise. Place the tip of your tongue against the ridge of tissue just behind your upper front teeth, and keep it there through the entire exercise. You will be exhaling through your mouth around your tongue; try pursing your lips slightly if this seems awkward.

Exhale completely through your mouth, making a whoosh sound.
Close your mouth and inhale quietly through your nose to a mental count of four.
Hold your breath for a count of seven.
Exhale completely through your mouth, making a whoosh sound to a count of eight.
This is one breath. Now inhale again and repeat the cycle three more times for a total of four breaths.
Note that you always inhale quietly through your nose and exhale audibly through your mouth. The tip of your tongue stays in position the whole time. Exhalation takes twice as long as inhalation. The absolute time you spend on each phase is not important; the ratio of 4:7:8 is important. If you have trouble holding your breath, speed the exercise up but keep to the ratio of 4:7:8 for the three phases. With practice you can slow it all down and get used to inhaling and exhaling more and more deeply.

This exercise is a natural tranquilizer for the nervous system. Unlike tranquilizing drugs, which are often effective when you first take them but then lose their power over time, this exercise is subtle when you first try it but gains in power with repetition and practice. Do it at least twice a day. You cannot do it too frequently. Do not do more than four breaths at one time for the first month of practice. Later, if you wish, you can extend it to eight breaths. If you feel a little lightheaded when you first breathe this way, do not be concerned; it will pass.

Once you develop this technique by practicing it every day, it will be a very useful tool that you will always have with you. Use it whenever anything upsetting happens - before you react. Use it whenever you are aware of internal tension. Use it to help you fall asleep. This exercise cannot be recommended too highly. Everyone can benefit from it."

I hope you can find some relief.

Wishing you much love and peace.

MsL

Thanks everyone for your support... I feel like i am a woman on a verg... LOL... I found myself think that right about now the exorsist scene of the movie was not nearly as bad i look at the present moment... Thank you again for your support i am just going on 3 weeks of this and it is making me rather meseriable..


I will go ahead and post a new introductoin in the New members place.. \


I hope everyone else is having pain free days and gental hugs...