Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-14-2009, 12:47 PM #18
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
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Hi Felicia,

It's great to see you here! Welcome to the forum ... everyone is so nice here so i'm sure you will fit in right away!! Please feel free to ask any questions you may have - i'm sure people will be more than happy to help you if they can!!

Thank you again for the information that you sent me regarding the TENS - I hope you don't mind me posting it on here, I just thought it would be useful for others as after speaking to both you and my PT's, they said that the information was very informative and useful!!

My PT's at my local Childrens Hospital and yourself told me that sometimes you have to persevere with the TENS unit and try it in different areas to get the best amount of pain relief ... sometimes that may involve putting it on the Spinal Cord even IF the Pain isn't present there as that is where a lot of the pain signals are!!

MomInPain - I DO believe that you can use the TENS machine on any two limbs that have RSD. My PTs told me that I could use it on both my leg and arm when the pain was too bad and a lot of the people I have spoken to with full-body RSD use it all over there body so i'm sure it would be OK but I would speak to your Doctor beforehand. I'm not sure if the TENS would work any different if you had a Spinal Cord Stimulator put in place, again that is something to talk to your Doctor about as I think sometimes they like to try the SCS on it's own without any other meds or therapies to see if it helps (or so I have been told by other RSD'ers on another forum).

I hope the TENS helps any of you that decide to try it. I am still looking into getting the TENS but my PT's don't think it will help as I now have Independently Maintained Pain and my RSD is in the CNS.
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