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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Senior Member
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Quote:
Mike |
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Magnate
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Thank you SO much for posting this article - I found it really interesting and am going to print it off and take it to my PM Doctor and see what he thinks and whether he can run any tests to check my B19.
When I was about 5, I had LOTS of small spots and rashes on my bottom and I had to go to the Doctors lots of times for them and they didn't know what they were and just kept giving me lots of cream. After about 6 months, they finally cleared up but I still have the scars from where they were! After reading on the internet about B19 Parvovirus, it said you most often get it when you are between the ages of 5 and 15 so that would make a lot of sense if it was that and is something to look into!!! I'm interested to know though why 100% of CRPS Type 2 patients tested positive for Parvovirus whilst only 70 something % tested positive in type 1 CRPS - were they mis-diagnosed or is everyone different??? I'm going to be interested in following this news. I recently participated in a Research Study provided by RSDSA where you had to give a DNA sample (spit into a container), fill in an online survey and then send it back off so maybe they were testing for this also - who knows! Thanks again for posting!
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To the World you may be one person, but to one person, you may be the World. |
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#3 | ||
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Member
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Mike, I find this article very interesting. I was diagnosed with this at some point. I am now trying to remember if it was before of after I had the surgery that led to my RSD. I always wondered if it was tied to the fact that I had Scarlet fever with a 107 degree tempertaure as a child. Or if it had something to do with my dog needing to be put down two days before that surgery from an undiagnosed auto-immune disorder. I also crushed the hand that was operated on 18 years ago. But I have always believed there was more too this than just that. Maybe someday we will know for sure.
Thanks, Denny |
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Newly Joined
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I am looking for some answers myself, as I contracted Parvo June 2012, rash came out July 2012, and I have suffered from two major spinal surgeries and severe joint pain, now having to go see a rheumatologist. Any help and research is greatly appreciated.
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