Drug stores sell very good heating/cold packs now that come with their own soft encasing. You can buy dry heat packs or moist heat packs depending on what works best for you. You can put them in the freezer if want cold instead, but either type can be put in the microwave for 30 seconds to 2 minutes to heat up. I have one that is clay based which produces a dry heat & another that produces a moist heat. The heat in both of them last a very long time...I'm talking hours & can be placed wherever you need them.

Its been a bit since someone posted here, but Im new and wanted to share what I have discovered.
I have RSD in 88% of my body so I go through fits of sensitivity, one is too sore, one is numb, one is hot, one is cold. Other than clothes, my biggest issue has been bedding materials. Comforters are too heavy to lay on my limbs, blankets to light to keep parts of me warm.
My hubby surprised me with some Canopy brand sheets. They are found at Wal-mart and I dont know what all these are made of or even what the thread count its, but they are absobant (sp) like cotton but as soft as silk, but not as freaky feeling as silk. (yes I know I said freaky, but, duh, I do have sensory issues...lol) They are kinda on the high end (a.k.a. expensive) but they are deep pocket (for our specialty matress), and are so kosher with my phsyco body and texture issues...
Also, my feet are always cold to your touch but are burning to me, they also sweat like an overweight football player at super bowl, I have started putting VIVA brand paper towels into the bottom of my crocs and house shoes I use a piece of two sided tape to hold it in place and it soaks up all the sweat without drenching my shoe and resulting in the foul smell of a sweaty foot (which oddly enough its always my shoes that stink not my feet....) and the viva brand is very soft and absorbant so it doesnt bother me and it takes a day to two to "fill" the paper towel.

Hi the sheets are Egyptian Cotton! I have some, they get softer as you wash them. Wonderful sheets, enjoy them...hopefully you will have a pain free night so that you may get some sleep.

Sandy

I am a 15 year old RSD patient, due to a severe ankle injury about two years ago, but I was only recently diagnosed. I fell down a stair, was forced to "walk it off" for a week away from home, then after 6 months of ankle braces, crutches, canes, maximum dosages of Ibuprofen, elevation, compression, rest, doctors visits, x-rays, MRI's, Physical therapy, etc. etc, i had to have surgery to repair the ligaments in my ankle, and was stuck in a wheelchair for 6 weeks. I was then put through all of the above again, but even as my ankle stabilized, I am still in constant, excruciating pain.
The only remedy that the doctor gave me is heavy medication, but with little or no avail. Some of the things that make the pain easier to live with are:

Socks: Dr. Scholls socks work great for the winter time because i can't let my foot get too cold, seeing as it already does not regulate temperature as the rest of my body does, they are sort but are supposed to provide circulation.
Sheets: I sleep with two safety-pinned together and a heavier blanket, and don't let the blanket over my feet because it hurts, but the sheets keep them warm enough.
On days where my pain is above a 7.5, or below the 4.5 on the famous 1-10 scale, i write down what i did that day, just to control the pain enough to sleep.
I constantly wear a brace, but with swelling it is painful.

I was wondering if anyone ever tried Tonic Water with Quinine for their RSD and if it worked or not, and any other remedies for this. I'm only 15 and being in high school with this makes it that much worse.

hi,

My daughter is 16 years old and has RSD, she is in constant pain as well. Have you tried one of the programs like the one at Childrens hospital or Cleveland Clinic for pain rehabilitation. You can pm me if you have other questions. You should post on the regular board if you want some answers. Join neuro talks, there are many teenagers on this board that will answer questions as well as adults. I am sorry for your pain. Where do you live?

I look forward to hearing from you.

Sandy

Hi,
Just read your post. That is a tough thing you have been through. I have RSD in my left foot due to neuroma surgery that didn't really ever heal plus an infection later down the road in foot. Anyhow, I am interested in your Quinine and Tonic Water. Do you pour it over your feet or drink it??? LOL...am really interested. Please let me know. I am not on this site much cuz I cannot figure it all out. Sorry to hear of all your pain...you are way too young.

Hello,
Thanks for the post.I am really looking for a Doctor in Rochester, NY area that can give me some type of relief, I have had nerve blocks, pills and still everyday am iin pain! Can someone help me find a GOOD Doc who knows what they are doing?
Thnaks all in advance, hope you all are well and stay smiling..

I have found two things that help "cool" my foot down. One is a product called Blue Emu. It comes in a jar. It is temporary relief.

And the best relief for a little bit longer is the aloe plant. Pull off a piece of the plant and split it open. Rub the pure aloe wherever you want it to cool down. Then, I split little pieces off and stick them between my toes. Sounds strange, I know, but it works for me. Maybe it will work for others. And you can use as much as you want. I then keep what is left of the piece in the refrigerator because the colder, the better. (unless my feet are cold).

Also, my daughter bought me some diabetic socks even though I am not diabetic. But their softness is wonderful. There is a tiny little seam on top but not like a regular sock. And, of course, the epsom salt baths for my foot. That helps,too.

Hope this helps somebody.

I wear light athletic pants for the same reason. Jeans add may too much pressure on the top of my foot. I can only wear them with shoes on. PJ pants are the most comfortable so far.

HEY!! I was reading through your post, and I saw that you were going to be on a plane soon... over course, I didn't look at the post date so I could be super late!!!!!! This may be completely weird, but I have RSD as well, and I have found that being on a plain actually makes me feel better on the inside. Going up and down is painful for me, but when we are at high altitudes it actually relieves alot of my pain. My doctor says this is beacuse of the barametric pressure change! Anyways, let me know if you were the same way!