i also have to problems with the sounds smells and lights . i most of the time end up on the couch i guess since its kinda harder and DH isnt here tossin and turning its easier to be kinda comfy. i wish that i could find something that would work for sleep and keep me asleep ..

carrie
ps we have no ticking clocks

It has taken me every day until today to remember what helped me to sleep even better than any sleeping pill or anti-anxiety pill a doctor could prescribe & better than Melatonin ever worked for me also. It is Kava-Kava. But I am allergic to it. I broke out in huge itchy welts. But before that happened, I slept like a baby for a few weeks. It had to build up to a certain amount in my body before the allergic reaction set in. I was pretty despondent for awhile afterwards because at that time sleep deprivation was a big thing for me & it was caused due to Fibromyalgia pain at that time. I didn't have RSD as of yet.

Now I don't seem to have a problem sleeping at all. It is all I do anymore. And the damn Medicare DX program I changed to won't pay for Provigil without my having had a damn sleep study done & using a CPAP/BIPAP machine. Can you believe it???? So now I am back to sleeping all the damn time again & being bitchy & miserable. They also won't pay for something else I need but now have to buy over the counter. So in the long run they were not cheaper. And I asked before changing to this company if they paid for both of those medications. And the answer was yes. They lied big time & are now costing me more than if I had stayed where I was. Well I am going back to AARP next year for sure. They paid for everything my doctor prescribed. I am going to lodge a complaint against this group. If anyone wants to know who they are, well they are America RX. They suck!!! They won't pay for everything hubby needed either, so he has had to change to a different drug. Ticks me off.

Does anyone know of anything legal we can take to stay awake without resorting to drinking any of those damn drinks like say "Red Bull". I do not want to have to resort to anything like that.

Well ya'll take care......

DebbyV

I just had to pick up a new insurance a few months back. It's called Community Care RX or CCRX. I don't know if it's in your area.

Like you though I have had to fight them. My Dr. filled out papers to keep me on Prevacid capsule for my stomach. It's called a Prior Authorzation. You might try that.

My Pharmacist of 17 years told me this was the best company he has dealt with. Sometimes I wonder too.

Sorry to hear you are having trouble staying awake. I went through that for a few years. Now I can't sleep.

It seems we can't win for losing at times with everything going on.

I can tell by what you are saying you are frustrated. I totally understand. Been there.

Try the Prior Authorzations from the Dr. and maybe that might get some of the meds you and your husband need. You call your insurance co. and ask them to fax the forms and the Dr. fills it out.

Glad to see you around again.

Ada

Hi Ada,

I too have become hypersensitive to smells over the past couple of years. Recently I changed all of my soaps personal body, laundry and household cleaners to natural products without all the added perfumes and chemicals. I even have a special face cream compounded for me without all of that awful stuff in it. It has made a big difference. I do however like the scent of lavender and use it frequently in the bath and bedroom.

To help with really bad household odors like cooked beans for example I like to put a pot of mulling spices with cinnamon and cloves on the stove. Just be sure to keep it on low and check frequently for evaporation.

I don't hear so well now due to my tinnitus, but that is definitely something that can keep me awake. It can become very loud at night when everything else is quiet.

I have read recently that any light source can be bad for your sleep, that one should have complete darkness with no lights even from clocks or other other electronics. I don't know how much truth there is to that, if I recall correctly it is thought to help with the natural production of melatonin by our bodies.

Just a few thoughts...thanks for your comments.

MsL

Hi Debby,

I'm sorry to hear you had that reaction to Kava Kava, I recall reading something about that but haven't looked into it too much yet. Thanks for the reminder.

I'm really sorry to hear of your troubles with not being able to stay awake!!!Do you think this could this be caused by some of your medications? Did you check with your doctor on that? Something else to consider is hormonal imbalances, especially since rsd affects our adrenals hormones, could you be suffering from adrenal exhaustion?
I sure hope you are able to get this sorted out. Keep in touch and let us know how you are doing.

MsL

Hi every one,

unrestful sleep is definately an issue for me also. My husbands snoring (i was never bothered by it before) I like others migrate to the sofa. I can actually hear lightbulbs hissing or buzzing. Shutting them off it goes away. My husband it Electronic eng....he said that frequency is audible to people but ussually isn't unpleasant or goes without recognition. I know RSD causes some hypersensitivities from my experience. Including scented things. I use alcohol on a damp cloth to dust with it leaves the house with a neutral smell. Also we purchased an ionizer and run on very low level on the floor I am not occupiing. Back to scents or chemical products. We now never buy anything that has a blue color. Cobalt is used to make the color. I do not know how bad it is for health/rsd but I scrutinize every product I buy now.

I would like to know more about that supplement coctail at bedtime. Several months ago I took melatonin at bedtime. One did nothing and 2 helped me fall asleep at somepoint but I woke up with a hangover groggy all day. So I wonder if the combination of brain supps. would be better.

Thanks for listening, hope you all get restful sleep

I had side effects from Kava Kava years ago. Same with St. Johns Wort.

I have a collection of perfume bottles so I bought a showcase to put them in to keep from smelling them. I couldn't give them up. But that one night, I had one that was driving me crazy and I had to go find it. It was sitting out though.

My sense of smell and feel have multiplied but my taste sure hasn't. At times I have no appetite at all.

I have learned though like someone said to eat a bite before bedtime. That also seems to help.

Ada

Kava Kava has shown a potential for liver damage. So it is not
recommended for everyday use anymore.

You might want to try Valerian. This does help, and is mild.
You want to choose a good brand, since some suppliers do not
put quality herb in their product. Look for GMP on the label of the product you choose.

Valerian has a peculiar smell, so if you reflux it, it will be unpleasant. So take it 1 hr before bedtime, so it has time to move out of the stomach.
This link gives the most recent information on Valerian, drug interactions, etc:
http://www.umm.edu/altmed/articles/valerian-000279.htm