Infection connection -- please research!

03-02-2009, 12:33 PM

Quote:

Originally Posted by fmichael

Dear Ed -

I am sorry if I overlooked your comments. As one whose pulmonary sarcoidosis went into spontaneous remission - as I am advised it does with aprox. 3/4 of Northern-European males - I'm wondering if you know of any studies (case-reports, etc.) involving the use of the MP with Afro-American females, for whom pulmonary sarcoidosis is often a death sentence?

And I certainly didn't mean to imply that you were supportive of the MP for any financial reason. My comment was directed at doctors whose practices seem to be based largely on providing unproven treatments across a wide range of specialties, without disclosing to their patients that these treatments have yet to be validated in controlled studies.

Mike

It's Roz not Ed,

Just a thought, Babesia (several strains) is a malaria like illness. Shortness of breath in the evening is a very common SX. The blood tests for Babesia are not accurate as well, maybe even worse than LYME tests. The M/P will not work for Babesia.
Hugs, Roz

03-02-2009, 12:54 PM

Dear Mike,

Here's your post on quinine, I believe it was from Ada's link. Do you think it might of been possiable that you had a HERX reaction? A herx. reaction can kill someone. If you were well, why on earth do you need a breathing machine at night? Please research Babesia, I beg of you. Much Love, Roz

I was given it years ago, and it was essentially useless. 100+ years ago it might have been the best drug available, but now we have far better.

There was, however, one interesting moment in which I accidentally aspirated a capsule into my lungs and was sick for weeks.

fmichael · 03-02-2009, 01:29 PM

Quote:

Originally Posted by buckwheat

Dear Mike,

Here's your post on quinine, I believe it was from Ada's link. Do you think it might of been possiable that you had a HERX reaction? A herx. reaction can kill someone. If you were well, why on earth do you need a breathing machine at night? Please research Babesia, I beg of you. Much Love, Roz

I was given it years ago, and it was essentially useless. 100+ years ago it might have been the best drug available, but now we have far better.

There was, however, one interesting moment in which I accidentally aspirated a capsule into my lungs and was sick for weeks.

Dear Roz-

I use the BiPAP machine for obstructive sleep apnea. This has nothing to do with the sarcoidosis, which has been clear for the last 2-3 years on CT lung scans, where it was first picked up, before being confirmed on biopsy.

And I'll take a look at Babesia, thanks.

Mike

03-02-2009, 01:47 PM

Check this out from Neurotalk

http://neurotalk.psychcentral.com/thread35024.html

Quote:

[I am a TBD Support Group Facilitator and one of the main tick borne diseases is Babesiosis. Babesiosis is a Babesia infection.

Just a heads up that locally we have had a dozen people over the years
with sleep apnea & Babesiosis and it has been noted in the literature as a symptom as well. So I would get tested for Babesiosis if you haven't been.
You probably haven't been.

It may be rare in some states- so far in California it is not rare- they did 3 complete serosurveys of communities (blood testing of whole communities)and found infection rates in people of 3.5%, 16% & 18%!! So it is basically an unknown epidemic in CA. on the East Coast it may be rarer but still worth ruling out because if your apnea is caused by this it is curable.

If you are in CA the strain is WA1, up & down the Pacific Coast it is WA1, stands for Washington 1, was found first in Washington State. So Oregon, WA, & CA you get tested for WA1. East Coast the strain is Babesia Microti.
Missouri there is MO1 and that is also in states around Missouri and in Kentucky and in Mass.

Just a note- it may be that your docs already tested you so just ask them, they may not know it can cause it though so it is worth asking!
Just a note,
Best wishes,
Sarah]

[I've been diagnosed with Babesiosis and Sleep Apnea. Can you tell me where you got the information that babesiosis can cause Sleep Apnea? I like to refer my doctors, so that they will give me the best treatment possible. Thanks, Rod.]

fmichael · 03-02-2009, 02:18 PM

Dear Roz -

PubMed searches for "Babesiosis sleep apnea" and "Babesiosis obstructive sleep apnea" yield "No items found." Any other search term suggestions?

Mike

Similar Threads
Thread	Thread Starter	Forum	Replies	Last Post
Thryoid connection	watsonsh	Autoimmune Diseases	4	05-24-2014 09:02 PM
Do you think there is a connection?	Twinkletoes	Multiple Sclerosis	6	05-27-2008 01:00 PM
Some Research Finds Over 70% Of People With MS Have Cpn Infection	Mark Hall	Multiple Sclerosis	67	04-01-2008 08:18 AM
Autism and the God Connection	wallyw1	Autism	5	07-20-2007 12:15 PM
Possible connection to PD	BEMM	Parkinson's Disease	3	10-31-2006 06:37 PM

Site Navigation

NeuroTalk Online Support Groups

Infection connection -- please research!

NeuroTalk Forums